tag:blogger.com,1999:blog-6542378222548786727.post1382980905590905904..comments2024-03-19T00:12:47.570-07:00Comments on Julies Myeloma Moments, Musings and Living Life with a Bucket List : Thanks Darza- 4 days later... I still feel Yucky, and You're Sabotaging my PartyJuliehttp://www.blogger.com/profile/08773473100504931050noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-6542378222548786727.post-68349898335979044012017-04-11T22:12:47.979-07:002017-04-11T22:12:47.979-07:00Hi Wendy, thank you for kind comments! I really do...Hi Wendy, thank you for kind comments! I really do appreciate it :)) It's surreal writing my posts to my "invisible online friends", and when you become "real", it gives me a huge smile and boosts my motivation to keep writing and posting. Good to know about Curt's trial treatments, and gives me hope and confidence to one day do the same. Glad he has history on what he on, as it would "scare" me to take unknown meds, but I guess that's the whole point of a trial, right. What "type" of MM does he have, or how are his levels measured? I know many that follow their Light Chains, as opposed to IgA, IgG, etc and MProtein. Tell him I think he is very brave and you are an awesome caregiver. Thank you Wendy!! xoxo Juliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-8809518585335190642017-04-01T18:46:28.455-07:002017-04-01T18:46:28.455-07:00Your comments are perfect! They are funny, honest...Your comments are perfect! They are funny, honest, well-articulated and compelling. Curt is on a trial called "ACY". Since it's a trial with some history, he has a good idea of what he's getting into. The trial has little side effects, he says. He does tire easily, but still goes to the gym. At 64, this isn't too bad! <br /><br /><br /><br />Wendyhttps://www.blogger.com/profile/04847109852401104846noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-34221465677378395632017-04-01T12:36:12.871-07:002017-04-01T12:36:12.871-07:00Aww thank you Wendy for your sweet comments. I jus...Aww thank you Wendy for your sweet comments. I just never know if I'm too personal or not, or which pictures I should post. Thank you for always reading and commenting. Glad your husband is doing well on the clinical trial. How did he choose, or was chosen for that particular study? I know one day I will "need" to do that too, but I would imagine it's a bit "scary" taking "unknown" meds, with possible "unknown" side effects and reactions. Tell him I think he's very brave. Glad you get to enjoy the appt days! Thank you Wendy! :))Juliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-4654912669905388482017-03-29T10:40:48.990-07:002017-03-29T10:40:48.990-07:00Hi! Thanks for your quick reply. My husband is o...Hi! Thanks for your quick reply. My husband is on a clinical trial and is doing pretty well. He's tired a lot and takes a nap everyday, but the results of the clinical trial, so far, are good. He takes Dex once a week and has a love/hate relationship with it! He's treated at Dana Farber in Boston. Although we live about 2 hours from there, their reputation as a world class cancer center is why we go. We try to make a day of it by doing a few fun things too. The camaraderie at the center actually helps a lot.<br /><br />The pictures on your website are adorable. You look pretty great. I hope you're feeling better.<br />Wendyhttps://www.blogger.com/profile/04847109852401104846noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-84762785481548476602017-03-29T00:36:40.209-07:002017-03-29T00:36:40.209-07:00Hi Wendy! Thanks for checking in and appreciating ...Hi Wendy! Thanks for checking in and appreciating my writings :)) Luckily I haven't been sick this year! Just lousy side effects that make me "feel" sick. I think I have finally isolated the burning feverish skin pain to Darza's 2nd life after infusion side effects. This week I will extend my Dex and see if I can get this bipolar life of mine under control lol. Hope all is well with you and your husband. Let me know how he's doing. xoxo Juliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-5062268254997471772017-03-27T09:14:04.055-07:002017-03-27T09:14:04.055-07:00Glad the flu is over. I have heard from so many p...Glad the flu is over. I have heard from so many people this year, that it's a bad one--even if you received a flu shot. I hope you feel better soon. <br />Great picture above. Wendyhttps://www.blogger.com/profile/04847109852401104846noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-37122862770426992672017-03-27T08:50:40.438-07:002017-03-27T08:50:40.438-07:00Ugh, so sorry Jan! The flu and feeling like the fl...Ugh, so sorry Jan! The flu and feeling like the flu is awful. Stay away from the cooties, and be healthy and ride! Hoping all the horses and darling kiddies are well and enjoying Spring! Thank you for always checking in, and all your cowgirl support :)) xoxoJuliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-44389927222529624652017-03-25T17:41:10.311-07:002017-03-25T17:41:10.311-07:00I just spent seven days battling the flu..hope you...I just spent seven days battling the flu..hope you aren't dealing with that. It was awful. <br />Happy Birthday to Scott...one great looking guy. <br />JCAnonymousnoreply@blogger.com