tag:blogger.com,1999:blog-6542378222548786727.post2215927042078470164..comments2024-03-19T00:12:47.570-07:00Comments on Julies Myeloma Moments, Musings and Living Life with a Bucket List : Pain here, Pain there, Pain EverywhereJuliehttp://www.blogger.com/profile/08773473100504931050noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6542378222548786727.post-38291036375697008372020-07-01T14:59:05.710-07:002020-07-01T14:59:05.710-07:00Hi Jim, thank you for reading and following my jou...Hi Jim, thank you for reading and following my journey, and for sharing your thoughts and ideas. Sounds like you've had to do a lot of deep soul searching in your life, and I appreciate you sharing your insights here. <br /><br />Pain and illness is really the only thing that drags me down, as most all my life was relatively healthy and pain free. I hate being controlled by illness and pain. I can deal with a terminal illness, if I have some semblance of quality of life. I never did drugs, and I will avoid strong (addictive) meds it all cost. Taking Dex steroids more regularly would be my choice over the opiods for sure. Thank you for sharing your personal experiences. Sounds like you've been thru quite a lot Jim, and I hope you have found peace and resolution to your challenges. <br />:)) Juliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-2274733445307557042020-07-01T14:50:13.136-07:002020-07-01T14:50:13.136-07:00Hi Bernadette, thank you for always reading and fo...Hi Bernadette, thank you for always reading and following my crazy journey, and for all your encouraging words of support! Yes, I hope to find out the source of all the pain, and figure out what to do about it. Hoping all is well with you and your family during these crazy times, on top of our MM challenges. Hoping the Virus is staying far away from you and your loved ones! xoxoJuliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-66275552861684378262020-06-29T06:25:41.959-07:002020-06-29T06:25:41.959-07:00Julie, you don't have to be responsible anymor...Julie, you don't have to be responsible anymore. You just have to be loved. Let it happen, with no effort from you. Turn loose of the reins and just...be. We are not in control of many things, and swimming downstream is much more restful than fighting the currents, when you are already tired.<br /><br />Our lives are supposed to be about loving, not fearing, enjoying each day as it presents itself and not thinking about negative, technical stuff that only serves as knowledge to deepen our fears. You know all this, you are a very intelligent woman with a huge heart full of love. But, I sense great fear there, too.<br /><br />You have nothing to fear. It's the "letting go" that frightens us. Not letting go of our physical lives but, rather, letting go of all we think we possess and control, ie our egos. They are the artificial selves we have created, and we have used them to convince ourselves and others that it is that which we really are. It is not! Turning loose of the lie is the first step to living, to being truly free of fear and the attendant chronic anxiety. <br /><br />These are just my personal experiences with my own disease, fear of death/separation and pain.<br />jim<br /><br />PS I know I said I wouldn't post again. No opiods, please Julie. /They kill the spirit, cause deep depression and will make life unbearable. I've been through that route. Reserve it for end-of-life, if ever.<br /><br />PS The opiod route is a very negative one, if it lasts for more than a few months. Twn years ago I was on a hydrocodone regimen. After three months, I became addicted to higher and higher doses for the same pain killing results. Four times I weened myself from them, during the next two years, only to start the increase again within a few weeks of resuming. They caused me deep depression, severe constipation, angry mood swings and a frightening, spiritual/energetic disconnection from family and friends. I will not use them again, until I am on my deathbed.Obnoxious Jimhttps://www.blogger.com/profile/10075448877501822219noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-76002511584491540152020-06-22T16:34:02.782-07:002020-06-22T16:34:02.782-07:00Hi Julie,
You'll figure out what's causing...Hi Julie,<br />You'll figure out what's causing the pain and find a way to get it under control. I greatly admire your ability to keep moving forward and write so clearly about the effort required to do that. Continuing to send you and your family my best wishes and socially-distanced cyberhugs, <br />BernadetteOsabravahttps://www.blogger.com/profile/17575776331692335771noreply@blogger.com