tag:blogger.com,1999:blog-6542378222548786727.post4889649171310734411..comments2024-03-19T00:12:47.570-07:00Comments on Julies Myeloma Moments, Musings and Living Life with a Bucket List : Sick... again... Sick of being Sick! Caution...Juliehttp://www.blogger.com/profile/08773473100504931050noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6542378222548786727.post-11896493424148250162016-06-06T12:36:04.071-07:002016-06-06T12:36:04.071-07:00Aww, thank you for checking in Ellen and your cari...Aww, thank you for checking in Ellen and your caring supportive words! I agree with everything you said! First of all, I am so happy for your CR! I hope that status lasts a looooong time for you! Keep doing what you are doing, as it's working!! I appreciate your words of encouragement and support. I am very hard headed about being an "alarmist" when I don't feel well. I know I should alert my Drs sooner than I do, but I am the "watch and wait" kind of cowgirl. I grew up with barely an aspirin and next to no antibiotics thru out my entire life prior to MM. My parents were "old school" and believed in "toughing things out". They prided themselves on their good health, no novociane at dental appts, etc. My mother lived to 88 and my dad has more spit and fire than me, at almost 90!<br />You would laugh at how I "let myself suffer" with minimal meds during my SCT. What a goof I am, now that I look back on it lol.<br />Thank you for all your kind and insightful thoughts Ellen, I really do appreciate your comment! ps- we have Goldstein in common! Thank you Ellen! xoxo Juliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-90622004190359737532016-06-03T10:06:22.473-07:002016-06-03T10:06:22.473-07:00Julie, you soldier on despite it all and it is adm...Julie, you soldier on despite it all and it is admirable, indeed. I think you are a great role model for us all. You always rally. I can understand your feelings all too well. I am only beginning the third year of myeloma, and there are days I feel really beaten down, even though I am so very luck to be in CR. I am just recovering from the flu, in April, which turned into asthmatic bronchitis in May Of course, I'm sure this never would have happened if I did not have myeloma. I try to take care of things as soon as they happen If I am not feeling well, I call my onc. or internist to let them know. Sometimes they can prescribe something that will help, but I feel it's important for them to know my condition. I don't mean to criticize you, but when I read your posts, it seems to me you try to battle it out alone. I understand that. You want to be as normal as possible, and not involve people in your illness as much as possible...that way you can deny the realities But, we are NOT normal. Never will be again. I find it hard to accept too. When I get a fever, I ALWAYS call the doctor. Sometimes you have to skip a treatment, sometimes not. You are a brave, kind soul, but you need to take care of yourself, and not worry about how it looks. You are not a whiner. You have good reason to be cautious with your health. <br /><br />So please.....take care of yourself. Pay attention to your body when it's trying to tell you something. It's important. <br /><br />Love your blog. You are an exceptional human being!ellen goldsteinhttps://www.blogger.com/profile/01599486948859630439noreply@blogger.com