tag:blogger.com,1999:blog-6542378222548786727.post5819544114136875169..comments2024-03-19T00:12:47.570-07:00Comments on Julies Myeloma Moments, Musings and Living Life with a Bucket List : Caution: Boring Post Ahead Juliehttp://www.blogger.com/profile/08773473100504931050noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6542378222548786727.post-17107224737706096762017-08-14T10:35:00.081-07:002017-08-14T10:35:00.081-07:00Hi Karen, thank you so much for your comments, and...Hi Karen, thank you so much for your comments, and letting me know how much my posts mean :)) Keeps me motivated to continue to post my rants and musings :))<br />So sorry your Jimmy is having such a challenging time :(( Revlimid caused me, as you say, "horrid GI" issues. I have several funny posts about almost not making it to my bathroom! Rev changed my life, due to the "expected" and "volcanic" reax for the several years! Check out my previous posts, such as<br /><br />https://juliesmyelomamoments.blogspot.com/2015/03/when-abnormal-becomes-normal.html <br />and<br /><br />https://juliesmyelomamoments.blogspot.com/2015/07/that-fine-line-between-tradgedy-and.html <br /><br />Actually most of 2014, 2015 and into 2016 Revlimid kept me close to home and so challenged re eating. Looking back, I shouldn't have been so concerned taking Imodium, as that was a life saver for me! <br />Ok, sweet friend, I will email this you too! <br />Thank you for always checking in and caring as you do, and I hope Jimmy feels better and you 2 can get out and about! xoxo <br />Juliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-55049537043808004662017-08-11T19:10:23.225-07:002017-08-11T19:10:23.225-07:00Julie.. you truly are a special person..hoping for...Julie.. you truly are a special person..hoping for positive results on the 15th... Jimmy's numbers are stable .. but more concerned with the creatine which is steadily rising.. have to do more appointments with kidney doctor. He also has those horrid gastrointestinal problems and fatigue. But the Rev is keeping things stable..kappa is about 40.. never normal range..considering he was about 1100.. with spinal fractures..so we are grateful..but as you know. It's very very difficult three years on various protocols.. cytoxan..velcade. Dex..Rev. kyphoplasty..we are kind of at a low point..he had his off week and didn't bounce back too much. .but your blog and the sharing of your experiences continues to give us hope..and Julie..please know from the bottom of my heart ..how much you are appreciated and needed. Karenhttps://www.blogger.com/profile/09409734219679344283noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-58859501448205811312017-08-10T22:48:41.298-07:002017-08-10T22:48:41.298-07:00Hi Karen! Thank you so much for all your support a...Hi Karen! Thank you so much for all your support and enthusiasm for my posts :)) Glad your Jim has had so many years of success with Revlimid. I did too early on, and who know, maybe, if need be, I may cycle back to it one day! Let me know how his appt goes. My next one is Tues Aug 15. Hoping you 2 are able to get out and about and "toss hay" too :)) Thank you again for all your support and friendship xoxoJuliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-13628749569403844912017-08-05T10:58:17.604-07:002017-08-05T10:58:17.604-07:00Just checking in.. glad you're going to the ho...Just checking in.. glad you're going to the horse arena to toss the hay!!.. still marveling with your strength, humor and coping mechanisms.. like I said.. boring is good..we go to Mt Sinai in NYC on Thursday..always that trepidation before these big appointments.. hopefully my husband, Jim, can stay on just the Rev.for now..been three years with assorted protocols.. hope your husband ,Jim,can get some relief for his legs...think of you often.. Karen.Karenhttps://www.blogger.com/profile/09409734219679344283noreply@blogger.com