tag:blogger.com,1999:blog-6542378222548786727.post7178594573756860320..comments2024-03-19T00:12:47.570-07:00Comments on Julies Myeloma Moments, Musings and Living Life with a Bucket List : Seriously Myeloma, What Other Suprizes Do You Have Planned for Me!Juliehttp://www.blogger.com/profile/08773473100504931050noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-6542378222548786727.post-197437439703468552020-09-06T13:59:12.360-07:002020-09-06T13:59:12.360-07:00Thank you Ron for continuing to follow my blog and...Thank you Ron for continuing to follow my blog and for your positive comments. Just one day at a time is all I can do, as my life has become so unpredictable and so unbelievable. Just don't understand how both me and Jim were sentenced with such awful diseases. Stay well and have fun with your family. Juliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-21533815294592688722020-09-06T13:57:35.203-07:002020-09-06T13:57:35.203-07:00Thank you Bernadette for reading and checking in. ...Thank you Bernadette for reading and checking in. Yes as awful as things are for both me and my husband, we are very blessed and lucky to have our adult kids so loyal and helpful and well as all the other others that care for us. We were so independent before, it's really hard to accept where we are now, but one day at a time, is all I can do :)) Hope you are well, and doing ok xoxoJuliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-85764881553436902382020-09-06T13:55:41.551-07:002020-09-06T13:55:41.551-07:00Thanks for checking in Christina. Sorry your numbe...Thanks for checking in Christina. Sorry your numbers are going up, but thankfully slowly. Yes pain is debilitating, along with all the other side effects, but hopefully Sept will be better as I think I have finally turned the corner. I read your blog too, and marvel at you do! xoxoJuliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-8018875157424893042020-09-06T13:53:27.256-07:002020-09-06T13:53:27.256-07:00Hi Aurelie, yes I did ask about Palliative Care, a...Hi Aurelie, yes I did ask about Palliative Care, and for Kaiser, only patients who can no longer leave their homes, are eligible. Maybe I heard wrong, but thankfully I have turned the corner, and the fevers are "gone" and the pain is lessening. I did find what works for me to lessen the pain, and I've learned to self treat and not wait for Dr help... July and Aug was just a mess. Hoping Sept will be kinder. Hope you are doing well, and thank you for reading and checking in xoxoJuliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-52582835595500600542020-09-06T13:50:41.075-07:002020-09-06T13:50:41.075-07:00Thank you Sheri, for following and commenting and ...Thank you Sheri, for following and commenting and caring as you do. I can't believe all I am going thru either, and agree, it has become very "cruel". I was so smug before, when I treated well, with few side effects. But one day at a time for me, and we'll see what Sept brings. Thank you for caring as you do! xoxoJuliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-26761925674866298532020-09-06T13:48:46.776-07:002020-09-06T13:48:46.776-07:00Thank you Jewell for checking in and commenting. C...Thank you Jewell for checking in and commenting. Congrats on your 5 years! Funny how I would read blogs and say the same thing, of "hoping I am not seeing my future". I used to think I didn't have bone issues. Ha Ha! I used to to be so smug about things, as I treated well in the beginning. But going on 11 years now, myeloma is really trying to win, but I'm feeling better now, and ready to fight more :)) Glad Darza is working well for you, I had a good run with it too xoxoJuliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-31374916816475967282020-09-06T13:46:14.745-07:002020-09-06T13:46:14.745-07:00Ugh Conda, that must have been awful. Hopefully th...Ugh Conda, that must have been awful. Hopefully that's behind you, and you're better now. Congrats on your 5 years! How did they define you as "high risk"? I remember my Dr telling me that at Dx too. Hope you are doing ok now xoxoJuliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-62385226954000378222020-08-23T10:38:39.410-07:002020-08-23T10:38:39.410-07:00Julie,I am so sorry for you and Jim!I will continu...Julie,I am so sorry for you and Jim!I will continue to pray for you both.I sure hope the pain will let up soon!<br />You are such an inspiration to everybody including me.<br />Thank you<br />RonAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-64200886945676964012020-08-19T11:42:32.854-07:002020-08-19T11:42:32.854-07:00Hi Julie,
Lots going on right now, huh? Hope thin...Hi Julie, <br />Lots going on right now, huh? Hope things improve soon and that you have the support you need to push on. You have lots of love in your life; reason enough to keep going. Sending warm cyberhugs and best wishes for you to feel better soon, BernadetteOsabravahttps://www.blogger.com/profile/17575776331692335771noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-70969131667655788082020-08-19T09:19:08.301-07:002020-08-19T09:19:08.301-07:00Hi Julie,
Boy, things sound really rough for you r...Hi Julie,<br />Boy, things sound really rough for you right now. I at least hope you are getting help around the ranch. I hope as well, that things have improved in the last week. I don't tolerate pain well, so not sure what I'd be doing. My numbers are going up ( kappa) so treatment (again) is in the near future but now yet. Sending hugs your way. hang in there.tahoegirl.bloghttps://www.blogger.com/profile/02018956654761369565noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-60619655739002374832020-08-12T10:50:00.868-07:002020-08-12T10:50:00.868-07:00Dear Julie, I am so sorry you are enduring such pa...Dear Julie, I am so sorry you are enduring such pain. When you talk about the difference between palliative and hospice care and not wanting to "go there yet", it might be good to discuss palliative care with your medical team. Palliative care doesn't mean you are at the end; it simply focuses on relieving and preventing the suffering of patients and improving quality of life at any point in the course of a patient's disease. You can still undergo active treatment, but palliative caare specialists are skilled in managing pain since it can be complicated. I do hope you find some relief. Please know that I am thinking of you. Hugs, AurelieAurelienoreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-63704863898915594642020-08-12T07:18:57.193-07:002020-08-12T07:18:57.193-07:00Julie, even though I may not comment often, please...Julie, even though I may not comment often, please know that I look every day to see if you have a new post. And my heart breaks for all that you are going through. I cannot imagine the pain. It is a reminder that, for some, myeloma is particularly cruel. Always thinking of you...Sheri Bakerhttps://www.blogger.com/profile/12724865638339534524noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-22055419714174101422020-08-11T09:17:05.376-07:002020-08-11T09:17:05.376-07:00This is Jewell. I haven't commented in a while...This is Jewell. I haven't commented in a while but have been reading your blog. I am so sorry to hear about all your pain. My heart hurts for you. I am going on 5 years now and I really hope that I am not seeing my future. I am trying not to take for granted my life now. I am on Dara and dex. It is keeping my kappa light chains down. I sincerely hope that your pain gets better and that the fevers go away.Anonymoushttps://www.blogger.com/profile/18096680266685495611noreply@blogger.comtag:blogger.com,1999:blog-6542378222548786727.post-67478790338226116402020-08-11T07:52:28.304-07:002020-08-11T07:52:28.304-07:00So sorry! I had peumonia fevers for weeks and I co...So sorry! I had peumonia fevers for weeks and I couldn't handle just that alone--- nor the conitinous coughing! But there was no pain.( I am 5yrs IGG high risk)Condahttps://www.blogger.com/profile/09387805579834620244noreply@blogger.com