So please Bear with my silly B-Babble :)
B is for Blood cancer Biopsy results Below
B is for some not-so-Bad news at all!
B is for a cute Bucket list Buy I spied
B is for a Beautiful Baby Blue Bug I cried
B is for this Blast to the past Beetle I Bought in a flash!
B is for having much to Be happy for
B is for this sweet Beetle Being Brought to me!
B is for Bursting with silly excitement
B is for Blessings I'm here to Blab about!
B is for this Bucket list Blue Beetle Bug
Blasting across our Southern most states, from West Palm Beach to me
B is for Miss Baby Blue Bug, Bringing joy and happiness Beyond Belief
As C is for Cancer that's suddenly Back
But this sweet Bewitching Bug cheered and distracted me when
Bummer Biopsy news, confirmed.... Boo-hoo, Blasted cancer is Back
Here's my sweet Baby Blue Bug loaded up
~ ~ ~ ~ ~ ~ ~
to the main reason you came to read this blog? Here goes:
AND TREATMENT PLANNING:
Below are my (brief) medical numerical details, which summarize my blood work and biopsy stats from diagnosis Dec 2009, to my current Sept 2013 out of remission stats. So dang it, after all my 2010 chemo, powerful crazymaking steroids, July 2010 high dose chemo, autologous stem cell harvest and transplant, and year and half maintenance chemo, all which gave me remission!!! ... until earlier this year, Myeloma decided to escalate and end my remission party
I've had 4
Biopsy #1: Dec 2009 = 67% cancer, at shocking diagnosis
Biopsy #2: June 2010 = 10% cancer, after 6 months intensive Revlimid, Dex Steroids, Cytoxan chemo
Biopsy #3: Aug 2010 = 0% cancer, after hospitalization, high dose Melphalan chemo and auto stem cell transplant
Biopsy #4: Sept 2013 = 15% cancer, after being off maintenance Revlimid chemo for only a year :(
I am IGA Myeloma, so one of the important Myeloma cancer markers is my Immunoglobulins:
Normal range (measured by Kaiser/City of Hope) blood tests = 70 - 400mg/dL
Dec 2009 = 5600+mg/dL (wow! I was sure a sickie, and didn't know it!)
Aug 2010 - Oct 2012 = very low, sub normal #s as my immune systems battles back after transplant
Dec 2012 - Apr 2013 = FINALLY in the NORMAL range!!! (but sure short-lived!)
June 2013 = spiked out of normal range, but no panic yet
Aug 2013 = spiked more, officially determined to be out of remission
Sept 2013 = edging close to 1300, which is over 3 times the high end of normal
Another important Myeloma marker is the M-protein, or M-spike via Protein Electrophoresis:
Diagnosis: Dec 2009 = 4.30gm/dL
During remission: Aug 2010 - early 2013, not detected at all!!
Official M-spike comes back: July 2013
Rising monthly: Sept 2013 = .96gm/dL
|Such pretty cells for such a deadly cancer|
1- I am not a happy cancer camper
2- I am shocked Myeloma came back so soon
3- I am a very happy babyblue bug owner :)
4- I am a very very happy mom, wife, horse-dog-cat-reptile, Birdie Momma, college counselor!
5- I am very grateful to have had all the fantastic medical treatments I have had, that saved my life!!
6- I wrongly assumed I would have remission status for years and years and years and years and years and years
7- I am extremely grateful and happy beyond words to still be here and have the amazing life I have, even though my energy and ability to be "me" is a fraction of what it used to be
8- All those medical stats mean -----> I will be back in treatment asap, back on chemo most likely this, or next month
9- All those medical stats mean -----> I am still partially dominating Myeloma, and fortunately my Doctors continued to monitor me very closely, and my out of remission status was identified FAST!
10- Even though the cancer has come roaring back, and much quicker than we anticipated, at least it was caught this time, in the treatable stage!
11- Very grateful for so many and so much, that is good in my life!
12- If you love me, don't share your germs and cooties with me! No hand-shaking, no kissing; "air hugs" only please! Myeloma is a cancer of the immune system, which means... duh... I'm "immune compromised", and can get sick easily
13- lucky #13... Myeloma is an incurable cancer...
And finally, you may be wondering -----> what is my "sudden" interest and excitement in an old 1974 VW Beetle???
It's a fun bucket list blast to my past, as my first car was almost exactly like this one, only a 1972. I always thought it would be super groovy to find a replica of my beloved baby blue bug, and so when I found out I was fully out of remission, and the cancer was back with a vengeance... that truly was a huge wake up call to me, that NOW is of the essence, and I could no longer put ANYTHING off, previously thinking I still had all the time in the world!!! Ha! My new motto: Think it... Do it... Now!!!
Next blog, I'll post a picture of me with my BabyBlue, driving to chemo treatments!! ahahahaaaaa.....