Thursday, December 30, 2010
Exactly Right Now... Dec 30, 2009 ... we were hearing the term Cancer... Multiple Myeloma Cancer... and that my blood plasma was 70% consumed with Cancerous Myeloma cells
Exactly Right Now... Dec 30, 2009... we were hearing that I was in Stage 2 of 3 stages of Cancer...
Cancer, Cancer, Cancer, Cancer, Cancer... is about all I heard...
At This Time ... Dec 30, 2009... my life as I knew it... had changed forever
At This Time ... Dec 30, 2009... I had an instantanous shift in thinking... from that of a very healthy, I'm living forever mentality... to... OMG I am mortal and I am really sick and I HAVE FRIKN CANCER!!
EXACTLY RIGHT NOW, DECEMBER 30, 2010...
I'M GOING OUTSIDE TO PET MY HORSIES AND CELEBRATE MY REMISSION, MY RECOVERY, MY AMAZING LIFE...
MORE reminiscent details later :)
Tuesday, December 14, 2010
One Year Ago Today... I was shocked when checking in and saw Oncology attached to Hematology...
One Year Ago Today... I was presumptuous about my 'good' health and saying to myself... "huh"... I don't belong in this Dept; I couldn't have cancer... I'm just really anemic! Cancer doesn't run in my family, so I'm really only here to have my blood tests analyzed. I'm just really fatigued and tired from the semester; I'm not sick...
One Year Ago Today... I was my goofy and silly self at this appt and they must have thought... O boy... this gal sure is clueless!!!
One Year Ago... a Week later... I was receiving serious phone calls from my Doctor
One Year Ago... a Week later... I was going for more blood tests which turned out even worse than the ones before and was told I may have to be hospitalized and receive emergency blood transfusions
One Year Ago... a Week later... I was surprised and shocked by an "unscheduled" Bone Marrow Biopsy
One Year Ago... a Week later... I was beginning to realize something serious might be going on with me
One Year Ago... a Week later... it was nearing the Holidays and I went about celebrating AS IF EVERYTHING WAS OK
One Year Ago... a Week later... I was awaiting the results of my first Bone Marrow Biopsy and beginning to process the seriousness of my situation... but still in optomistic denial
One Year Ago... a Week later... I still was still convincing myself everything would be ok... had to be ok... and NOTHING REALLY could be wrong with ME... THEY must be making a mistake...
Sunday, December 5, 2010
5 months ago today... I received my own Stem Cells back to reinvigorate and restore my Chemo ravaged system from my War on Myeloma
5 months ago today... I had no idea what July 2010 would bring... good thing!
5 months ago today... I had already survived The December Diagnosis, multiple Chemo Treatments, multiple life-saving Medications, never-ending Blood tests and body Surveillances
5 months ago today... I had thinning/shedding hair and had already had my signature Blonde ponytail chopped off
5 months ago today... I was on the 6th floor of City of Hope Hospital looking out my window wondering what in the world happened to me and wondering what was in store for me
5 months ago today... I was learning how to be a patient Patient... learning how to let others take care of me
5 months ago today... I was wondering how powerful Chemicals would be tolerated by my body
5 months ago today... I thought about life and death
5 months ago today... I thought about MY Life and Death
5 months ago today... I wondered about potential outcomes... and focused my energy on The Positives
5 months ago today... I was amazed with bio-medical sciences and cancer treatments
5 months ago today... I was overwhelmed with what had become of Julie
5 months ago today... I was realizing Cancerous-Julie would never be Free-Julie again
5 months ago today... I was beginning to understand that I had been diagnosed with CANCER
5 months ago today... I was beginning to realize just how much my life as I knew it had changed and would be changed FOREVER
5 months ago today... I learned the value and need for Television noise on 24/7
5 months ago today... I was processing the loss my daily freedoms- realizing I'm an IN-Patient
5 months ago today... I was attached to an IV stand 24/7 that held life-saving chemicals and fluids
5 months ago today... I was receiving treatments to Save My Life and it was SUCCESSFUL!
5 months ago today... I was and am so grateful for my Doctors, Nurses and entire Medical Staff at Kaiser and COH
5 months ago today... I was and am so thankful for all of YOU and your unwavering contact and support
5 months ago today... I DID NOT KNOW I WOULD BE IN REMISSION TODAY and I WOULD GET A NEW LEASE ON LIFE!!
Today, December 5, 2010 I am counting my blessings, I am very grateful, I am very appreciative, I am very awed and I am very happy :)
All this... in under a year's time...
Helpful Myeloma Links
- American Cancer Society- Multiple Myeloma
- American Society of Hematology
- Ask Dr Durie
- Cancer Therapy Advisor - MM
- Chemo Care- Drug definitions
- Dexamethasone Steroids
- Health Monitor Magazine
- International Myeloma Foundation
- LLS- Myeloma
- MM resources
- Multiple Myeloma Research Foundation
- Myeloma Beacon
- Myeloma Blogs
- Myeloma Central
- Myeloma Crowd
- Myeloma Symptoms
- Patient Power
- Support Groups
- Understanding Multiple Myeloma
My Story... How my MM was diagnosed
My treatment trail ride forks to City of Hope hospital as I will saddle up beginning June 9, 2010 for a new rodeo called an Autologous Stem Cell Transplant!
My initial chemo regimen:
Pill form Chemo= Revlimid (10mg, 15mg capsules)
Allopurinol- keeping the kidneys healthy
Acyclovir- anti-Shingles, anti-viral
High dose IV Cytoxan chemo
Neupogen to build up stem cells for Apheresis, stem cell harvest, which was very successful, as City of Hope was able to collect 9.5 million of my own stem cells
July 2010 Hospitalization:
Two days of high dose Melphalan chemo
Then July 5, 2010 = my Autologous Stem Cell transplant infusion!
And you can read my whole story from that point forward in this blog!
What is multiple myeloma?
Cancer starts when cells in the body begin to grow out of control. Cells in nearly any part of the body can become cancer, and can spread to other areas of the body. To learn more about how cancers start and spread, see What Is Cancer?
Multiple myeloma is a cancer formed by malignant plasma cells. Normal plasma cells are found in the bone marrow and are an important part of the immune system.
The immune system is made up of several types of cells that work together to fight infections and other diseases. Lymphocytes (lymph cells) are the main cell type of the immune system. The major types of lymphocytes are T cells and B cells.
When B cells respond to an infection, they mature and change into plasma cells. Plasma cells make the antibodies (also called immunoglobulins) that help the body attack and kill germs. Lymphocytes are in many areas of the body, such as lymph nodes, the bone marrow, the intestines, and the bloodstream. Plasma cells, however, are mainly found in the bone marrow. Bone marrow is the soft tissue inside some hollow bones. In addition to plasma cells, normal bone marrow has cells that make the different normal blood cells.
When plasma cells become cancerous and grow out of control, they can produce a tumor called a plasmacytoma. These tumors generally develop in a bone, but they are also rarely found in other tissues. If someone has only a single plasma cell tumor, the disease is called an isolated (or solitary) plasmacytoma. If someone has more than one plasmacytoma, they have multiple myeloma.
Multiple myeloma is characterized by several features, including:
Low blood counts
In multiple myeloma, the overgrowth of plasma cells in the bone marrow can crowd out normal blood-forming cells, leading to low blood counts. This can cause anemia – a shortage of red blood cells. People with anemia become pale, weak, and fatigued. Multiple myeloma can also cause the level of platelets in the blood to become low (called thrombocytopenia). This can lead to increased bleeding and bruising. Another condition that can develop is leukopenia – a shortage of normal white blood cells. This can lead to problems fighting infections.
Bone and calcium problems
Myeloma cells also interfere with cells that help keep the bones strong. Bones are constantly being remade to keep them strong. Two major kinds of bone cells normally work together to keep bones healthy and strong. The cells that lay down new bone are called osteoblasts. The cells that break down old bone are called osteoclasts. Myeloma cells make a substance that tells the osteoclasts to speed up dissolving the bone. Since the osteoblasts do not get a signal to put down new bone, old bone is broken down without new bone to replace it. This makes the bones weak and they break easily. Fractured bones are a major problem in people with myeloma. This increase in bone break-down can also raise calcium levels in the blood. (Problems caused by high calcium levels are discussed in the section “How is multiple myeloma diagnosed?”)
Abnormal plasma cells do not protect the body from infections. As mentioned before, normal plasma cells produce antibodies that attack germs. For example, if you developed pneumonia, normal plasma cells would produce antibodies aimed at the specific bacteria that were causing the illness. These antibodies help the body attack and kill the bacteria. In multiple myeloma, the myeloma cells crowd out the normal plasma cells, so that antibodies to fight the infection can’t be made. The antibody made by the myeloma cells does not help fight infections. That’s because the myeloma cells are just many copies of the same plasma cell – all making copies of the same exact (or monoclonal) antibody.
The antibody made by myeloma cells can harm the kidneys. This can lead to kidney damage and even kidney failure.