It's Goodbye October, Hello November!
Inching closer to my 9 year Myeloma Diagnosis Anniversary! Wow! Becoming more and more surreal, unbelievable, crazy, amazing that I am still here!.
I just can't believe that 9 years ago this time Myeloma was RAGING inside of me, and I didn't know it yet.... My IGA was close to 5800 (normal = 70-400). My M Protein was over 4.3 (normal = 0) and my first Bone Marrow Biopsy showed 70% cancerous myeloma plasma cells! And here I am to talk about it, almost 9 years later, having survived more rounds chemo than I can count, a Stem Cell Transplant, and all the 9 years of side effects I have endured! But I'll reminisce about all of this soon...
Because, since my last post, the Adventures of Julie in Myelomaville continue :))
1- Yes I bit the dust and got sick, but thankfully only a lousy head cold. Seriously, how amazing is that! I go on a Cruise with 2000-3000+ humans, and only get a lousy head cold! Guess those magical Zarxio, Neupogen WBC immune system building injections gave me some back up power to fight off all the potential nasty cooties out to get me! I am very cautious and careful though, and incessantly wash and sanitize my hands, myself, those around me, my living space, etc. I tried very hard to not let anyone touch me, hug me, and I never shake hands, I use antibacterial wipes to touch most anything public, and I brought my Mint Isopropyl Alcohol spray to sanitize and spray anything and everything and everyone! My finger nails even turned a lovely light green from the the Wintergreen color LOL. Wow, I sound like a freak... but it worked... I did not get any deadly viruses, bacterial yuckies or pneumonia, etc...
2- Next I agreed to begin the Vintage chemo Cytoxan with my Velcade and Dex steroids... only I am going to Cheat... ssshhhh don't tell my Dr yet, but no way am I downing 8 frikn Cytoxan pills at one time! I asked her for a lower dose, and she was kind enough to lower the standard of 10 Cytoxan pills to 8, but after I picked up the Rx, and saw them, and began to visualize ingesting all of them at once!... I'm Helllllllooooo, Noooooo, I'm not going to put all those in me at once, risking a nasty GI backlash! I know, I know, I'm a Cancer Patient with Incurable High Risk Myeloma, and I should be on board for high dose- kill off those super strong myeloma cells trying to kill me!! Well, yes, but No! At this point in my life, and treatment.... Quality of Life, and lessening the chance of feeling gross and sick, is my main priority! Yes my myeloma is 4 Times the High End of Normal right now... but sorry, I just can't stand the idea of getting grossly GI sick. See way baaaaaack in June 2010 I had "that reaction" to IV Cytoxan, and uuggghhhh, nope, no thank you... not again, if possible. So Tomorrow Night, Oct 29, after taking 40mg Dex steroids in the morning, my weekly Velcade shot in the afternoon, I will very tentatively, unbravely take 4, yes four of the 8 Cytoxan pills!
Blue just like my lil blue Bug...
Special parking privileges!
Sharing my Crazy Myeloma story
Mutts For Myeloma
Leading the Pack
But 1 lil 4mg Dex steroid pill did help!
My hubby Jim is having such mobility issues
Best Son Ever Scott, pushing Jim for the Walk
Susan and our Hanna
Me and our crazy puppy Jack
And Daughter Alissa with her Nala
Kristy, and her adorable kiddies
Jack, Nala, Hanna
So happy you could come!
Jack, Nala, Hanna
with her adorable Pugs
Knuckles and Porschia
And I'm still laughing about the amount of Meds I'm needing to take to keep me ALIVE! Here's to Velcade, new Cytoxan, Dex steroids, Mepron/Atovaquone, Acyclovir... just to name a few LOL