No new news to report from my status on 1.19.19
Hoping my stats are even better in February!
I am so thankful this triplet of Velcade, Cytoxan, 40mg Dex steroids is making a dent in overpowering Myeloma... well making a dent to an extent, somewhat, that is. My IGA didn't plummet to normal or anywhere near lol, but it certainly moved in the right direction! Last labs you can see on my previous post show I am still 3x the High End of Normal, but that's sure an improvement on the previous months!
I marvel everyday, every treatment, what my body has been through and able to handle for 9 years. Still this myeloma diagnosis and experience is surreal and an out of body non reality for me. Yet I do what I have to do, daily, weekly, monthly, and so on. "It Is What It Is"... I tell myself all the time. Carry on Julie, you're not in control any longer... On treatment days I get up and take 10, 4mg Dexamethasone Steroids, which = 40mgs! Then a few hours later, I show up for my Velcade shot. A few hours later I take 8 Cytoxan pills at 50mg each for a total of 800mg. Seriously, how can I be doing this? How does my body tolerate it? I would love if there was a little camera I could ingest, that would show the adventures going on inside of me. How incredible would that be! I'd love to see what is happening to me cellularly, chemically, biologically. I'd love to see how the cancer cells grow, and take over. I'd love to see how the chemos ambush and trick the cancer cells, killing them off, or disabling them. I love science, but I'm not smart enough to fully understand all this amazing stuff!
I do have nausea later in the night, but not too bad
If you are a myeloma patient, I highly recommend the Myeloma Crowd Facebook support groups. They are an invaluable source of information, support, understanding, sharing and myeloma comradery. https://www.myelomacrowd.org/connect/