4.8 - Hospital Arrival- during the day, my chemo Nurse arranged Admission (8pm) and Private room for me in advance for my 2 bags of Platelets and 2 bags of Blood :)) Scott had to take me in and out, in a wheelchair. How sad is that. Pallative delivered one here a few weeks ago :((
4.9 - Hospital all night long, came home in the late morning exhausted. No Sleep. Wonderful Nurses, just too much monitoring all the time, but I understand why.
4.9 - Home, Shower, sleep, super weak legs, problems from that, etc. Taking Zarxio to raise WBC.
4.11 - Pallative Home Health Nursing Team came and will come again 4.14 to set me up with more help. Get this! It's the same wonderful team we had for Jim. They cannot believe how fast I've gone down hill, and how Myeloma is totally eating me up alive. I'll arrange for a Remote bed, continue with the Phlebotomist coming here for weekly for labs. as I'm too weak to go anywhere. Will take more steroids for strength and functioning. Cannot believe the weakness I've been experiencing for weeks, months..., especially recently. Never appreciated the power and job of Red Blood cells. Used to always worry so much about my super Low Immune System. Now, I would be happy to completely completely completely Bubblize myself and not worry about my low WBC, if I could strengthen my Reds for mobility and functionality. Getting places in my house is a big challenge and a "catch 22", and scary. But I force myself every morning to get to the bathroom, then walk to the family room from our bedroom so I don't loose muscle and strength. I will not stay in bed all day, besides it's not comfortable, and the little doggies need outside in the morning. I'm also in such a "catch 22" where my stupid Extramedulary Alien Mass won't let me eat much, so I get more weak from not eating much, preventing me from strengthening my legs, arms, body, etc for mobility. So then my mobility and functionality is so super weak, I fear not being able to get off the pottie, or falling. So then I eat and drink less, so I am not challenged by bathroom event all the time. But that's not good either, as I'm so thirsty all the time, and my body needs hydration, or stupid Extramedularlly tumors are sucking up all my hydration... But often when I do eat... a few hours later... oh boy, move out of the way fast... I laugh, cry at my circumstances. Worst case, I will crawl to my bed or couch in our bedroom for stability getting up. How ridiculous is this, for me, used to be "cowgirl Julie. And of course, Nothing really tastes good anymore. I watch the travel cooking channels and dream of eating some of the things I see there. Oh well, next life... Doggies are getting lots of left over treats now lol, cuz I barely eat anything I prepare. It's all so CRAZY! And to think who I used to be :((