Exactly Right Now... 11:30ish am, December 30, 2009... hubby Jim and I were sitting in Hematologist/Oncologist Dr Lee's office learning the details and facts about the results of my first bone marrow biopsy...
Exactly Right Now... Dec 30, 2009 ... we were hearing the term Cancer... Multiple Myeloma Cancer... and that my blood plasma was 70% consumed with Cancerous Myeloma cells
Exactly Right Now... Dec 30, 2009... we were hearing that I was in Stage 2 of 3 stages of Cancer...
Cancer, Cancer, Cancer, Cancer, Cancer... is about all I heard...
At This Time ... Dec 30, 2009... my life as I knew it... had changed forever
At This Time ... Dec 30, 2009... I had an instantanous shift in thinking... from that of a very healthy, I'm living forever mentality... to... OMG I am mortal and I am really sick and I HAVE FRIKN CANCER!!
!@#$%^&**&^%$#!@#$%&@#$%^&+*&^%$~!@#$%&^%&^$#%@#%&^*!!!
EXACTLY RIGHT NOW, DECEMBER 30, 2010...
I'M GOING OUTSIDE TO PET MY HORSIES AND CELEBRATE MY REMISSION, MY RECOVERY, MY AMAZING LIFE...
MORE reminiscent details later :)
Thanks for checking in and following my ongoing Myeloma cancer blog, which I began June 2010, to document my "summer vacation" at City of Hope Hospital for my Autologous Stem Cell Transplant. I hope you enjoy my candid musings and treatment status updates. Please comment so I know you've stopped by! Look for my 2021 status updates on the 1's, but I'll surprise you and post in-between :)) Thanks for reading, caring and commenting!
Cowgirl Up!!! ... Does Horse Poop Cause Cancer??
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Helpful Myeloma Links
- American Cancer Society- Multiple Myeloma
- American Society of Hematology
- Amgen
- Ask Dr Durie
- Cancer Therapy Advisor - MM
- Chemo Care- Drug definitions
- Cytoxan
- Darzalex
- Dexamethasone Steroids
- Health Monitor Magazine
- International Myeloma Foundation
- Kyprolis
- LLS- Myeloma
- MM resources
- Multiple Myeloma Research Foundation
- Myeloma Beacon
- Myeloma Blogs
- Myeloma Central
- Myeloma Crowd
- Myeloma Symptoms
- OncLive
- Patient Power
- Pomalyst
- Revlimid
- Support Groups
- Understanding Multiple Myeloma
- Velcade
My Story... How my MM was diagnosed
October/November/December 2009...
Most of my life I was VERY presumptuous about being healthy, taking my (mostly) GOOD health for granted...
I was committed to annual check-ups for all of us, and so late October 2009, my daughter and I went for our annual and very routine physicals.
My treatment trail ride forks to City of Hope hospital as I will saddle up beginning June 9, 2010 for a new rodeo called an Autologous Stem Cell Transplant!
Surprise, surprise... my routine blood tests revealed extreme Anemia, significant White and Red Cell issues, low Platelets, and a variety of other CBC red flags! I was (stupidly) not worried when my GP doc left repeated phone messages to contact him, and when we did speak, I (stupidly) requested postponement of his referral appointment to the Hematology Dept until the end of the Fall academic term.
Arriving for my first appointment Dec 14, 2009, I was confronted with the check-in sign that read: "Hematology/Oncology"... What? Nooooo! not me... I must be in the WRONG place! And so my diagnosis journey began with vials and vials of blood drawn "stat", urgent Dr consultations, a surprise and painful Bone Marrow Biopsy, a full body Skeletal Scan, more blood tests stat, and then on 12.30.2009... THE revealing meeting... the "huh-what" moment ... the confirmation diagnosis that I, Julie, have CANCER!!!
Happy New Year to me, I just learned a new vocabulary word:
Multiple Myeloma!!! MM, Multiple Mye-what-loma!!!
January - June 2010
My medical metamorphosis began.
I read, and read, and read and researched and researched MM. I trusted my expert Oncology/Hematology team's plan and began my "New Normal" as a cancer patient.
My treatment plan was developed to include powerful Dexemthesone steroids paired with Revlimid chemotherapy, with the plan to be hospitalized for an Autologous Stem Cell Transplant July 2010.
I began living "one day at a time" like never before.
Jim was a wreck. Alissa and Scott were stunned; family and friends shocked.
Me... Cowgirl Up! I got back in the saddle and knew I was in for the ride of my life!
I did well on my initial pill-form Revlimid Chemo, "roid-rage" Dex Steroids and other supportive meds. I am forever deeply grateful and appreciative for all the love and support from everyone in my personal and professional life! I thank all of you for working along with me, and allowing me to continue to lead a semi "normal" life!
YOU have helped save my life!
My treatment trail ride forks to City of Hope hospital as I will saddle up beginning June 9, 2010 for a new rodeo called an Autologous Stem Cell Transplant!
Ye-Ha, let the adventure begin!
Chemical Warfare...
January 2010 - May 2010:
My initial chemo regimen:
Pill form Chemo= Revlimid (10mg, 15mg capsules)
My initial chemo regimen:
Pill form Chemo= Revlimid (10mg, 15mg capsules)
Pill form Dexamethasone Steroids (40 mg, 4 days on, 4 days off!
Omeprazole for steroid acid reflux
Mepron (looks like yellow finger paint) Anti-fungal, Anti-viral, etc for my very compromised immune system
B-12
.81 Aspirin to prevent DVT, Revlimid complications
Allopurinol- keeping the kidneys healthy
Acyclovir- anti-Shingles, anti-viral
June 2010:
High dose IV Cytoxan chemo
Neupogen to build up stem cells for Apheresis, stem cell harvest, which was very successful, as City of Hope was able to collect 9.5 million of my own stem cells
July 2010 Hospitalization:
Two days of high dose Melphalan chemo
Then July 5, 2010 = my Autologous Stem Cell transplant infusion!
And you can read my whole story from that point forward in this blog!
Allopurinol- keeping the kidneys healthy
Acyclovir- anti-Shingles, anti-viral
June 2010:
High dose IV Cytoxan chemo
Neupogen to build up stem cells for Apheresis, stem cell harvest, which was very successful, as City of Hope was able to collect 9.5 million of my own stem cells
July 2010 Hospitalization:
Two days of high dose Melphalan chemo
Then July 5, 2010 = my Autologous Stem Cell transplant infusion!
And you can read my whole story from that point forward in this blog!
What is multiple myeloma?
What is multiple myeloma?
Cancer starts when cells in the body begin to grow out of control. Cells in nearly any part of the body can become cancer, and can spread to other areas of the body. To learn more about how cancers start and spread, see What Is Cancer?
Multiple myeloma is a cancer formed by malignant plasma cells. Normal plasma cells are found in the bone marrow and are an important part of the immune system.
The immune system is made up of several types of cells that work together to fight infections and other diseases. Lymphocytes (lymph cells) are the main cell type of the immune system. The major types of lymphocytes are T cells and B cells.
When B cells respond to an infection, they mature and change into plasma cells. Plasma cells make the antibodies (also called immunoglobulins) that help the body attack and kill germs. Lymphocytes are in many areas of the body, such as lymph nodes, the bone marrow, the intestines, and the bloodstream. Plasma cells, however, are mainly found in the bone marrow. Bone marrow is the soft tissue inside some hollow bones. In addition to plasma cells, normal bone marrow has cells that make the different normal blood cells.
When plasma cells become cancerous and grow out of control, they can produce a tumor called a plasmacytoma. These tumors generally develop in a bone, but they are also rarely found in other tissues. If someone has only a single plasma cell tumor, the disease is called an isolated (or solitary) plasmacytoma. If someone has more than one plasmacytoma, they have multiple myeloma.
Multiple myeloma is characterized by several features, including:
Low blood counts
In multiple myeloma, the overgrowth of plasma cells in the bone marrow can crowd out normal blood-forming cells, leading to low blood counts. This can cause anemia – a shortage of red blood cells. People with anemia become pale, weak, and fatigued. Multiple myeloma can also cause the level of platelets in the blood to become low (called thrombocytopenia). This can lead to increased bleeding and bruising. Another condition that can develop is leukopenia – a shortage of normal white blood cells. This can lead to problems fighting infections.
Bone and calcium problems
Myeloma cells also interfere with cells that help keep the bones strong. Bones are constantly being remade to keep them strong. Two major kinds of bone cells normally work together to keep bones healthy and strong. The cells that lay down new bone are called osteoblasts. The cells that break down old bone are called osteoclasts. Myeloma cells make a substance that tells the osteoclasts to speed up dissolving the bone. Since the osteoblasts do not get a signal to put down new bone, old bone is broken down without new bone to replace it. This makes the bones weak and they break easily. Fractured bones are a major problem in people with myeloma. This increase in bone break-down can also raise calcium levels in the blood. (Problems caused by high calcium levels are discussed in the section “How is multiple myeloma diagnosed?”)
Infections
Abnormal plasma cells do not protect the body from infections. As mentioned before, normal plasma cells produce antibodies that attack germs. For example, if you developed pneumonia, normal plasma cells would produce antibodies aimed at the specific bacteria that were causing the illness. These antibodies help the body attack and kill the bacteria. In multiple myeloma, the myeloma cells crowd out the normal plasma cells, so that antibodies to fight the infection can’t be made. The antibody made by the myeloma cells does not help fight infections. That’s because the myeloma cells are just many copies of the same plasma cell – all making copies of the same exact (or monoclonal) antibody.
Kidney problems
The antibody made by myeloma cells can harm the kidneys. This can lead to kidney damage and even kidney failure.
Happy Anniversary! and many, many, many more!
ReplyDeleteI haven't forgotten your comment on my blog re a knitted horse (well I do forget and then I remember, I am a bit (lot) more scatty than I use to be - I left the oven on all night last week) so now my Christmas Craft splurge is out of the way - I might get round to something! :D
I am glad it is behind you..... the hair thing gets better ... trust me.... mine is growing and growing and I am not cutting it ... I do color it though...
ReplyDeleteHappy New Year to you and yours ... from one survivor to another..
I don't really want to say Happy Anniversary - because there isn't really anything "happy" about it except DEC 30, 2010 - where you are in remission. I still can't beleive that this has happened to YOU of all people. I'm so glad that you are who you are and have fought MM and are in REMISSION!!!! I think this coming year will make up for this past year. :)
ReplyDeleteYou are such an AMAZING person! So glad you went out and had a great DEC 30, 2010!
Love you so much!
RR
Congratulations! Yest you should be celebrating!! I am 43 days post transplant and feeling amazing! Life has changed for all of us diagnosed with cancer. The word cancer sucks and all the fear, sickness, treatment and uncertainty that goes with it. But we are stronger, and enriched with a zest and a greater appreciation for life, Happy New Year and may 2011 bring you health, happiness and peace! -MM Survivor and fighter, Jeanie
ReplyDeleteAmazing and miraculous!!! Love from Gay
ReplyDelete