Just have to note the date 2 - 22 - 11
For those that know me, you know why this date is symbolic to me!!!
For those of you that randomly stumbled upon my blog, or just know me virtually... my birthdate is 11-22
I've decided since I am so VERY FORTUNATE to be in Myeloma Remission, and GRATEFULLY I don't have any huge, dramatic news for you as I did in 2010, I will now write blogs on symbolic or interesting numerical dates.
I've always found patterns in numbers fascinating, but they tend to stand out even more now--
Perhaps in my next life I will be a mathematician, engineer, computer programmer, statistician, etc LOL
So for now, I just wanted to note this interesting date and let you know that I am doing ok :
I am on Cycle #5 of Post SCT Revlimid maintenance
I am on .5 mg of Revlimid, 21 days on, 7 days off
And so far, so good!
I only occasionally have a rash now
I still have crazy symptoms of Neuropathy... but not nearly as bad as when it attacked me in late Sept 2010 thru Oct, Nov, Dec. It began to lessen a bit in Jan and Feb...
OR have I just gotten used to it and learned to function numb, tingly, achey, and with weird nerve burning sensations???
I do feel tired and fatigued all the time and don't sleep more than 2 or 3 hours at a time... this is wearing on me... and I debate on whether or not to ask for some sort of "medical sleep assistance" ... any recommendations???
On the up-side of continuing Revlimid-chemo...
There must be some sort of hair-growing properties to it, as my new hair is growing like crazy... albeit dark and curly... but growing, growing. Hubby Jim wants to start on it, so he can grow hair. Funny when Jim jokes and says to friends... "O, I'll be starting Julie's chemo soon...." they of course look shocked and wonder what's up... then Jim quickly relates the hair-growing properties of Revlimid.
Grows eyelashes too as my original blonde eyelashes are once again long!
Funny how many people think my new dark "poodle do" is my ORIGINAL REAL hair and are so surprised to learn that I was always "Goldilocks" and the SCT chemo (Cytoxan and Melphalan) sure changed that for me!
So I quickly point to my still-golden eyebrows and golden eyelashes (when I don't have mascara on), and draw the relationship for people of how to tell a person's REAL hair color...
Which I did at a college staff meeting, by saying... "you know how you can tell a person's REAL hair color?????? (drum rolllll.....)
By One's EYEBROWS ... NOT the "Other Way" you've all be told" ... hahahahahahaaaaa
Great reaction from my colleagues thank you very much!! Yes, I'll be hittn the comedy circle soon!
And I will leave you with this amazing clip from the King's Speech movie... so very relevant in my life in so many many ways ... but that's an entirely different blog!!! For those of you that might be offended by swear words or are at work viewing my blog or have young young children around... you might want to lower the volume a bit...
Or not... LOL :)
And in the meantime, create a Myeloma Kite here - as Celgene will donate to the IMF!
Thank you for enjoying my blog and being loyal followers of my life's musings!
I created a kite - they even had a pic with a all of wool and needles - I had to pick a state I think I may be in Alaska!ReplyDelete
I keep trimming my hair before it gets to the curly stage - it wasn't a good look for me! :D
Due to one of those lost in translation moments I briefly thought we would next be hearing from you on 3 November.