December is a month of reflection and recollection for me, with a lot of original Myeloma diagnosis milestones:
Dec 14, 2009 first Hematology/Oncology (I'm in the wrong place) appointment
Dec 18, 2009 first surprise, why me, shocking bone marrow biopsy
Dec 30, 2009 totally unexpected Myeloma C A N C E R diagnosis
I am feeling a bit melancholy... as being re-diagnosed and out of remission so soon has hit me differently than my initial diagnosis... but enough of this... and on to my recent statistics.
Had my monthly oncology appointment on Monday and even with being back on Revlimid chemo and Dex steroids and all the other meds... my Myeloma markers still increased:
Specifically my IgA immunoglobulins are now 1890, up 400 points from just last month, and more than double what they were this summer when I came out of remission. On Kaiser's scale, normal range is between 70-400
My M-protein (M-spike) is now 1.4, up from zero after my autologous stem cell transplant in July 2010.
My oncologist wants to double my Revlimid dose, (from 5mg to 10mg), but I said no thank you, let me enjoy the holidays without increased side effects and possible complications. My initial 2010 treatment started at 10mg, with somewhat bearable side effects. But when we increased to 15mg, I wound up with a serious rash and other dangerous side effects, so we quickly backed down to 10mg.
Onward the battle goes...
Live happy, live well, and make a difference somewhere, somehow, with someone or something as often as you can!
Hang in there, Julie. Xoxo!ReplyDelete
Oh Julie, I'm sorry to hear this. Has your oncologist considered other options and combinations? We have heard promising results here for relapse, with some of the newly approved drugs and even going back on Velcade. Ernie has been on 10 mg. Revlimid for 3 years now. Thankful his system can tolerate it. Praying you can enjoy the holidays and catch some sun with your pups. Battle on!ReplyDelete
Julie,You are the best at being positive.This too will pass! Have a greatReplyDelete
I read every single blog entry. I love you and so thankful for you. Love MadonnaReplyDelete