Thank you for your concern when I only update once a month. I don't want this blog to bore you with too many insignificant updates, so I've focused on "less is more", posting my relevant monthly cancer stats along with some interesting personal life tidbits. Trust me :) I could post daily, weekly for sure, as so much happens in my life!
|My sweet hubby Jim brought these to help me feel better!|
Not sure why August was worse than some other months? I keep thinking about how I tolerated huge doses of Dexamethasone steroids during my initial treatment in early 2010. For 6 months I took 40mg Dex DAILY, 4 days on, 4 days off continuously!!! My dosage of Revlimid was the same too, 10mg daily, 21 days on, 7 days off. For sure I had all kinds of crazy side effects back then, but not the extreme "volcanic (lower) GI eruptions" I have now! My oncologists have confirmed that my entire physiology is changed, and my GI system is definitely different since my stem cell transplant.
As I reflect back and connect the dots, I realize how differently my treatment affects me now, since Myeloma came roaring back last year.
So with my new "chew and poo" lifestyle, I have become rather "home bound". Haven't been to my college office in weeks. I was very sad to miss my 32nd/29th "Fall Opening Day". Thank goodness I can still help students online. I think about how fortunate I am under these circumstances, as Jim has created such natural beauty in our backyard, and I am never without amusement and entertainment here. From all the animal residents and my human family's shenanigans, there is never a dull moment! Click here for the "Triplets", baby sparrows update!
But however beautiful and entertaining my home is, I did suffer physiologically quite a lot this month. And basically every month from my meds, or perhaps it's side effects from IGA myeloma itself? Most of my current life is centered around trying to eat to get proper nutrients in my system to fight stupid cancer, and then wondering if it will "stick". Most of the time, no...
|I like the combo versions the best! Mixed veggies and fruits|
Here's my most recent statistics:
WBC's = 2.8 (4.0-11 scale) too low, thus very susceptible to everyone's cooties
ANC (Absolute Neutrophils Count) = 1.3 (1.8-7.7 x 1000/mcL) eekk! too low
M-Protein/M-Spike= 0.70 (normal = 0.0) too high
Beta Globulin Electrophoresis= 1.27 (0.65-1.10 scale) high
Gamma Globulin Electrophoresis= 0.35 (0.70-1.60 scale) low
Protein Electrophoresis= (always) Abnormal
IGA= 979 (70-400 scale) down a speck (I'm "high risk" IgA Myeloma)
IGG= 279 (700-1600 scale) too low
IGM= 17 (40-230 scale) low
And so I carry on. One day at a time, monthly blood work to monthly results. I've felt a bit better the last few days, as I'm on a little medication break. The war starts up again on Wednesday with Rev, and will slam me more after I take my Dex. But if these powerful chemicals are significantly punching Myeloma in the cellular gut, as I get kicked in the GI gut, I'll never quit!
|Such a spectacular sunset, last day of August|
Live happy, live well, and make a difference somewhere, somehow, with someone or something as often as you can!
Some interesting reading:
I should have stayed on Revlimid maintenance!
Cancer Cases Among 9/11 Early Responders Continue to Grow
Remembering Arnold Goodman- The myeloma community has lost a courageous and inspiring soul
Remembering Stephen Kramer- Another valued voice of the myeloma community has been lost.
Goldman Sachs Former Lead Director Dies of Multiple Myeloma
(MMRF) Saddened by Loss of Dear Friend and Board Member Edward Jay Phillips
Who knew these famous people died from Myeloma!
Multiple myeloma is incurable
Oh Julie, I'm so sorry! That bland diet would not be received well with Big EZ, but you have to do what you have to do to get something to stick! Praying this month brings more calm in your GI tract! Happy you have a home with beautiful views and animals to entertain you. Much love sent your way from NC!ReplyDelete
Hi Linda! always so nice to hear from you :) Hope you and EZ and your beautiful family are doing wonderful. Yep this "chew and poo" lifestyle is getting very old! Does EZ have any of this from his Rev maintenance? I will have to check to see if you've updated your blog recently. Not sure if you'll see this, but I sure appreciate you stopping by as you do, and I look forward to your and EZ's update! Much love back :) xoxoDelete