Yep, 5 years ago TODAY, somewhere between 11:30-1:00, I was officially diagnosed with Myeloma. Multiple Myeloma. Multiple stupid Myeloma. But I'm still here, 5 years later!!!
So I've lived 6 myeloma December 30th days, surviving 5 years since diagnosis... weird math that is!
But it's the dash ( - ) between the years that matters and adds up to those important 5 years!
Live happy, live well, and make a difference somewhere, somehow, with someone or something as often as you can!
Ok, enough of my numerical silliness.
2014 is rolling over to 2015 in just hours and December hasn't been very kind to me. This month brought a lot of GI upset-unpredictability, tiredness, fatigue, headaches, neuropathy-buzzing, etc, so I didn't do much or leave the house much. I missed being able to enjoy fully moving into my new office and missed holiday festivities with my staff, friends, family, pets, nature, etc...
Then several days before Christmas, I totally bit the dust with a lousy sinus head cold fever thing. Still not fully well now, and sadly Jim and Scott caught my cooties this week. Cruel stupid germs. I see NO point in illness and sickness... (except isn't it nature's way of eliminating the weak...). I hate being sick and I hate being weak. But, thanks to what's left of my immune system, my biological-military battled the bugs and I am better now without hospitalization or Antibiotics!
And that's a a big deal to me, as I was always proud of how healthy I used to be, how few bugs I caught, and how my body battled on it's own.
Just before I really bit the dust and my 101 fever tortured me, B.F.F. Kristin came over and she and Boots fell in love:
These are some of the cutest pictures I've ever captured!
Not long after that, I really went down hill fast and spent the last week feverish, all stuffed up, coughing, etc. We cancelled all our holiday festivities and parties. I didn't even get around to decorating the house this year, as I just didn't have the internal "helium" this December...
Did I mention, I haven't been on Revlimid for a week and a half+ now... just happened to end my 21 day Rev cycle right as I got sick, and I felt so yucky, I haven't taken Dex for 2 weeks. Such a cheater I am!
But in the last day or so, I have felt better and even able to have a super fun moment with some of my fave student/office pals today. I look like the little ol bag lady lol with her bag (which was take-out for my sickies at home). Thanks everyone for coming out to
, notate my 5 year anniversary!
Talk about a Fun group!!!
And as the sun sets on 2014...
I continue to evaluate and reevaluate my situation, and really, the only wish for 2015 that I have, is to have the physical strength to do the things I want to do... which is really not much at all. I just want my pre-myeloma life back, so I can go where I want, do what I want, be there for others and not be consumed in physical symptoms, side effects, medicine regimens, and germs out to get me!
And just before I logged in to write this blog, I read an email from my awesome oncologist. I had written to her when I was sick, updating her with my situation and cancelling my appointment for last Friday. I have a new appointment for this coming Friday after New Years. She sent me my blood test results... and also said... "M-protein is up... thinking about going up on Revlimid... let's talk about this on Friday... please don't worry... we have other options..."
WBC = 2.7 (normal = 4 - 11)
ANC = 1.4 (normal = 1.8 - 7.7)
IGA = 1070 (normal = 70 - 400)
M-protein = 1.14 (no cancer = 0.0)
So Happy New Year 2015... hellooooo Revlimid 15mg.
Of course 15! It will be 2015
And of course continues my #5-theme!
Hi Julie! Happy New Year! Sorry to hear you have been down with the "crud"...for us it was the flu, and it was miserable. Two weeks later we are still weak and coughing, but slowly improving. Thankfully EZ avoided pneumonia, but the fever and body aches knocked him off his feet. No fun over the holidays when you can't enjoy the good eats and fun times with grandkids! Love the horse pictures above...so cute! Praying 2015 brings some resemblance of pre-MM normalcy so you can get out and enjoy life!ReplyDelete
Always so wonderful to hear from you Linda, and I am thrilled to read your blog update! So beautiful and inspiring! And I am so happy EZ is doing so well. Happy 2015 and cheers to many non-MM adventures for all of us :)Delete
Julie,Congratulations for your 5 year anniversary!! I really enjoyed the comment from the 6 year friend`s last blog you wrote. You have such a knack at uplifting people I think that is what helps your medical condition so much.Delete
Since I also like numbers thank you from all of us for writing more often than in 2012 or 2013.
Thanks Ron for appreciating my writing here and on others' blogs. I could write daily, but I wouldn't want to bore everyone with my daily musings ;) Thanks for all your support! Hope all is great in your life!Delete
First of all I have to start by saying I like Ron's comment with regards to your blogging numbers. I so wish this blogger had a 'like' symbol/button and why can't we insert emoticons, I like them too? :) What I find even funnier is that whenever I type the word 'blog' the spell check tells me it is spelt incorrect.
Happy New Year to you Julie. I truly hope that 2015 is going to be your year. A big, big congratulations to you for reaching 5 years. So well done!!! You are such an inspiration to us.
Sorry to hear you have been ill, not nice at all. But if for nothing else what I have learned from MM, you have to listen to your body. One step at a time. You must be so despondent about your M Spike reading too. xx
All these thank you's but thank you too for your lovely words of inspiration on my blog. It's fabulous being friends with someone so far away with so much in common. You will notice that I never comment on the comments and this has come about because I kept just finding myself saying thank you to everyone all the time and I didn't want that thank you to lose any importance. I see you are very good at commenting back :) Perhaps I should make my new years resolution to make a better effort at commenting on comments. They do mean so much to Jimmy after all.
I updated our blog tonight; we heard yesterday that Jimmy goes in next Tuesday for his SCT. All I can say is.....nervous days ahead! But you can read all about it.
Lots of love,
Hi Viv! Yes a resounding THANK YOU to you and the others too. I agree, as I find myself always thanking my supporters and commenters. Means so much to us to have the support and encouragement. So don't worry about over-using Thank you :) I agree, I wish the blogs had a "like" button too. Not sure why Google hasn't gotten with that yet! And back in the day, I was so overwhelmed with my situation and treatments, I didn't comment back much either. I also didn't know if people would stop by on the same post to see my comments... again, too bad our blogs don't have that notification... so thank you Vivienne for all your support, and I will read Jimmy's update asap! Hugs and love from across the globe :) xoxoDelete
Hi Julie, just had a chance to read your latest post. So sorry you were down for the count in December and holiday festivities and all. Looking forward to a time you feel well enough and have the time to connect for one of our fun visits. Love you. GayReplyDelete
Hi Gay! Great to hear from you, and I look forward to catching up with you asap! Yes Dec was quite challenging for me, and hope things calm down... but not a chance... with my higher dose. O well, at least I'm still here and have as many good days as I do, when I do, and we'll get together on my next good days! Thank you for being such a great supporter! xoxoDelete