I think I'll continue on my "less is more", semi wordless pictorial blog theme, as there's so much to say, but I just don't have my usual witty way to convey all this crazy cancerous stuff consuming my life.
In addition to the passing of our dear family member Claudia (see previous post), I had several others in my circle pass away this month. Too many, too soon, so cruel... makes so little sense to me.
As for me, May was medically challenging. Seems like this Revlimid cycle went on and on and on. I even "cheated" on my Dex schedule, as I'm just so sick of feeling sick and so tired of being tired, and so over dealing with all of this. I didn't take my regular (mg amount) Dex dose, and I skipped a few weeks, and then when I did go to take it... lol... I discovered I had never reordered my prescription, so I couldn't take it anyway! I know... shame on me! It's getting more difficult all the time to have "normalcy" and "normal" activities in my life, so this month I cheated on the Dex (not the Rev). It's gotten so bad, that to go anywhere anymore, I can't eat beforehand or during any event. I went to a wedding up a very remote canyon and realized how awful it would have been had I had a GI emergency... I ate a few bread-rolls and left not long after the ceremony. In my pre-cancer life, I would have been one of last off the dance floor...
So here's my current life in pictures:
than swallowing ANOTHER dang pill
So at my last oncology appointment, I suggested to my Dr that I go full on 15mg, but do 2 weeks on/2 weeks off (instead of 3/1) to give my challenged body a break. Yes, I know... word is you're supposed to hit cancer hard and heavy... but I am just so tired of feeling awful and having such a limited life... it's all about finding treatment I can "live" with.
My life in numbers:
WBC's = 2.7 (low- why I feel so yucky and fatigued), 4 - 11 = normal range
Platelets = 117 (low), normal range= 130 - 400
M-Protein = .88 (yippee! a bit lower than last month), normal = Zero
IgA= 1320 = (up from last month :( 70 - 400 = normal range
ANC = 1.3 (low), normal range= 1.8 - 7.7
I know you are so sick of feeling sick. Hope the new regimen of 15 mg. two weeks on/two weeks off works for you, and that you can enjoy being away from "john" for awhile!ReplyDelete
Hi Linda, thanks for always checking in :) yes, I am hoping for GI calm with my new 2 + 2 plan! What maintenance level Rev is EZ on? Bet you have fun plans for this summer!! xoxoDelete
Oh Julie, you sound like you are just over everything. I hope the regimen makes a difference so you can live a little.ReplyDelete
Think of you often
Hi Viv! yes, so over this... I would just love to go back to my pre MM life... but what a silly fantasy. But I know as yucky as my side effects are, I am so much better off than others. So very happy for Jimmy's Remission status! wow! what an amazing recovery he has had. I will write you back asap! xoxoDelete
Julie,Sorry you are not feeling better.I know you have always been such anReplyDelete
active person with your love of the outdoors.Stay encouraged,You are always the best I know at that.
Hi Ron, thanks for always checking in and encouraging me! Hoping you're having a wonderful summer with your family, traveling and living life to the fullest!Delete