Dear Friends and Followers:
If you haven't read my 12.6.16 post, please do, as that drama has continued in my life. Fortunately, the several day course of Dex Steroids gives me a break, then back (lol funny unintended pun) to the excruciating pain, that has migrated from my lower back to my mid and upper left side, back, ribs and chest. It's the take-your-breath-away type of pain. Pain like I have never experienced before. The RELIEF from Dex is undeniable and truly unbelievable!
I will be doing a "Skeletal scan" asap to check for Lytic lesions .
So why my post on December 14? Another off the "6's theme" post? :))
It's symbolic December anniversary time! 7 years, yes SEVEN years ago today I had my FIRST shocking appointment in Hematology Oncology, and I must note this pivotal moment in my life, annually. I will never forget the shock and awe of THAT DAY as if it was today...
December is my month of my life changing, mind altering, never to be the same Julie ever again, diagnosis anniversaries. Still so incredible and unbelievable to me. Each year of survival is incredible to me. All the December 2009 pre-diagnosis blood tests, conversations, my first Bone Marrow Biopsy, all the medical appointments, all the realizations, still so incredible to me. Everything still so shocking. Yes, I am very "lucky", blessed and very fortunate in so many ways, but each year has been so different, so challenging, depending on my cancer status and treatment protocol. If you'd like to read my thoughts on each previous anniversary, look to the right and click on my December posts since 2010. I think this December will be my most conflicted, melancholy, reality-check oriented of all my anniversaries...
My first Hematology Oncology appointment was with Dr Soon Ki Lee. Random assignment? I don't know. I'll never know. But how "lucky" was I to have her as my initial myeloma doctor. Tragically she passed away last year. Still unbelievable. She diagnosed me with incurable, terminal cancer and I am still here. I am about 9 years older. I am here, she is not. Beautiful human being, inside and out.
I had my first month on Pomalyst status check, yesterday Tues Dec 13, and thought you'd like to know how Pom and I are doing together. I did lab work Thurs Dec 8. Unfortunately it was on Pom day #18, so my blood does not reflect a full 21 day cycle of Pom. Not to mention all the Jr Tylenol, and Jr Advil meltaways I "ate like candy" to try to get some relief from the excruciating back pain... And due to the initial Pom rash reaction, I took Jr meltaway Benadryl most every dose too. And I was battling the lovely head cold that caused my horrendous back issue.
Hmmmm, wonder how these meds (and my crazy "complications") may have affected my results? I reported everything to my Dr, but we didn't discuss possible interactions, and I wasn't on top my game (because of my pain), and forgot to ask if there might be Pom interactions.
I'll let these picture stats do the talking here:
Side effects, side effects, side effects galore...
Ok Pomalyst, get to work
But I know, I know, I have to do it to stomp myeloma. So what do you think I suggested? Yep, my head is spinning, my mind is analyzing, my whole self is scared, I'm processing this reality, and putting on my big girl boots for the "next step".
I'll end on some GOOD NEWS for you, as I'm guessing my myeloma followers are wondering if the pain might be from pneumonia? NOPE! Per my Dr, my chest and lungs are clear! It truly was "just" a lousy headcold and one WRONG position cough, that messed me up big time :((
WOW..I am speechless and really can't find the correct words to say a thing. You have gone through the ringer. The cough, crossing the leg's and the back oh that pain is the worst especially when there is not a damn thing to do about it. Of course your family was concerned but you know your body. Have you notice your pain tolerance level going up? These number's truly make me sad Julie. I'm being honest with you my friend. What you are feeling in your body, mentally, emotionally and spiritually I just have to say "strength, balance and strong will." Medicine is changing so rapidly and I pray for the Julie cure. I just have to take a deep breath here...in.....out. and you still smile. I'm thankful for your honest blog and updates. Wish we could visit with each other but in time. Take care my friend and know I love you. Your friend, TheresaReplyDelete
Hi sweet friend Theresa! Thank you so much for checking in and following my crazy story! You're on my 2017 "bucket list", to finally get together and catch up. I'll let you know a "good steroid day" asap! Hoping you had a wonderful holiday with your family xoxoDelete