So where did I leave off... not sure, thanks to continual "chemo fog"!
Darzalex, Pomalyst, Dexamethasone are doing their thing... I hope.. as I really don't know. Last "myeloma marker" labs were 4.13.17 and things looked pretty good then. But that was when I was doing this awesome Triplet Cocktail weekly. Per Darza protocol, I began the every other week regimen this past Tuesday, May 2. Things went ok, but I have to laugh about the crazy bi-polar experiences my poor body goes through.
I pre-med at home with 20mg Dex Steroids, first thing in the morning. Then I'm additionally "pre-medicated" at the chemo lab with a Big Bag of Benadryl and Tylenol pills. When I arrive at the lab, I'm full of life, actually feeling semi normal, and not in too much pain or GI distress. But when the Benadryl meets the Steroids, oooooo boy, it's woozy woozy time, combined with the hyper-bounce from the Steroids. Hello bi-polar reax inside of me lol. I was chatting with my chemo friend Josie/Josephine, supporting myself on my IV stand, when I felt myself getting dizzy and woozy physically, and mentally woozy foggy. It was a weird feeling, going from ok, to drugged up. I finally gave in, and went back to my chemo bed, as I didn't want to pass out and be dramatic. It really is amazing how medications/drugs impact our bodies. I never did much medication prior to my myeloma diagnosis, so all these side effects taking over my body, is still very strange to me.
Tuesday, Wednesday is still ok for me, as the meds are still romping around inside of me. But late Wed I begin to feel a bit icky and bloated, but not too awful. Thursday I definitely begin to wane, and often the GI stuff begins. But this Thursday, I managed to hold it altogether to attend a fun Relay for Life event. Crazy how many myeloma people I now know in my area. 2 of the ladies in this picture (in addition to me) have myeloma, the others are breast cancer survivors:
(Still looking for my 2013 reunion picture
Here's Birdie's Blog :)
Hello from the chemo lab-