Can I say it again... Yep, I thought not much would happen in just 10 lil days between posts :)) But who am I kidding, this is life on the Myeloma Roller Coaster!
Not long after my last post, I took my myeloma status labs. I was really looking forward to knowing how I was doing, since beginning the 2nd phase of the Darzalex protocol. See, for the first 8 weeks, Darza infusions are every week. Then beginning week 9, infusions are every other week. Then beginning week 25, infusions are once a month. Got that? Here's the dosing "fine print".. It's really confusing at first, then it all makes sense. With my plummeting numbers and treatment success (in just 2 months from the initial weekly treatments), I was very curious how this 2nd phase treatment, every other week, would fare.
What's your guess what my IgA did???
So for the remainder of May into June, perhaps the lower dose of Dex did affect the impact of Darza and Pomalyst? Plus, if you know me, and you.know.me..., I took the opportunity to lower the steroids a step further. In light of the new every other week Darza dosing, I went ahead and opted to NOT take the Dex steroids on my Darza week OFF. So not only did myeloma not have Darza attacking it weekly, myeloma got a break from Dex steroids smacking it around too. Oooppss! Maybe not such a good idea. Ok, ok, I will do Dex weekly, regardless of the Darza break. (Yes, this was all discussed this with my Dr, and she of course agrees.)
which entertains the other patients
I've gotten very proficient texting and writing one-handed