Well today was "Abdominal" Liver-Kidney Mass Biopsy Day! Seems like I am chasing so many turmors, masses, fractures, high IGA and M Protein stats, low CBCs, and crazy Myeloma symptoms all the time. I'm forever trying to wrap my overly full head around how this insideous cancer just keeps morphing and evolving inside of me. So wish I could see what all this looks likes inside of me. I do see my scans, read my reports, and the Drs show me pictures of my lovely damage, but of course I don't have a "trained" medical eye, so it all looks like outerspace and alien beings to me :))
Preceding the biopsy today, was continuing our "old school trial" of 40mg Dex steroids daily- M, T, W, Th, along with Kyprolis chemo on Mon and Tues weekly. Dex has given me new energy for 4 days, but stolen my sleep of course. After all this time on Dex, I am so used to it's roller coaster, bipolar effects. I never know what each day's reaction will be. I do eventually crash of course, sometimes more yucky than other times, and eventually I do get some solid sleep at night. I've never been a day napper, as I've always been on the go, but who knows, I might eventually accept my age and diaganois, and learn how to just "relax and snooze" whenever I want lol. Sadly, as a result of all this, FATIGUE seems to be one of my worst enemies now. FATIGUE is real, debilitating, limiting and frustrating, and different than just "being tired". Fatigue just totally drags you down, and you just don't think you can move, or do anything. It's so exhausting, and it makes me dizzy too... just wish I could get my energy back, even to a small degree, to just be "me",, well an older more damaged version of me, but me, back, would be nice.