Chemo's coming to gobble you up again!!
Can you guess which I take WHEN?
This Rx comes from the Kaiser "specialty pharmacy" in San Francisco
They are so wonderful with personal calls, and sending it FedEx next day!
|Hello again my friend Revlimid!|
We'll be friends for 3 weeks on, 1 week off.
Cost is unbelievable! I just received my new Rx!
(and the 2013 price is even higher than my 2010-2012 (of course!)
Ready for this... $9,283.57 per 21 day cycle! OMG!!!
Interesting article here regarding cost and survival
|The magic hot pink pill to prevent allergic reactions and hives from Revlimid|
Back in 2010 when they tried higher doses with me I had huge allergic blotches and rashes...
I didn't realize how serious it was at the time
|Good ol Aspirin to prevent blood clots|
and deep vein Thrombosis from Revlimid
|ROID RAGE right here !|
I have a love/hate relationship with you Dex!
|Omerprazole to prevent ulcers, acid reflux, etc|
These I have to remember to take longer, as the Dex roids have been
wreaking havoc on my GI system
|Antiprotozoal to prevent Pneumonia and other cooties!|
It has the consistency and appearance of yellow preschool paint, with a Citrus taste
Quite pricey at over $2500 per Rx
|Antiviral to prevent Shingles|
I forget if I did this pre and post stem cell transplant in 2010
And I think I will add B-12 and a daily vitamin to this chemo cocktail as I keep getting sick!!! ggggggrrrrrrrrrrrrrrrr
How do I feel overall? Kinda spacey, mentally worn down and a bit sad. Seems like I am sick every week now. (Home sick again now! ugh!) Most of the time, I feel dehydrated, dizzy, nauseated, weak, tired, GI yucky stuff and nasal stuff etc!!!! Just go away Myeloma!
I really thought I would be "different" and get remission for a long long long time... instead, Myeloma came back fast and from all the studies I read... my clock is ticking faster than I really allowed myself to absorb before. Am I lucky if I have 10 years from diagnosis?
2009 + 10 = 2019
Tick... Tick... Tick... Tock
Live happy, live well, and make a difference somewhere, somehow, with someone or something as often as you can!
Love and prayers coming to you from North Carolina. You will DOMINATE this, Julie!!ReplyDelete
Thank you "lovethebeach"! Do you have a blog? My little blue bug is from N Carolina!! :)Delete
Sorry to hear you're back in the barrel again....relapse ain't no fun. But big things may be coming at us just around the corner at ASH in a few weeks and clinical trials are advancing to Phase 3 with the monoclonal antibodies so we may just see some game changers over the next 12 to 18 months...hang in there! Good things yet to come! :)ReplyDelete
Thank you for the encouraging words Steve! Do you have a blog?Delete
Nah....haven't started a blog yet, Julie. Have considered it but....finding the time? Have spent most of last 4 years posting at the acor.org MM listerv and at Pat Killingsworth's blog. But I do like to make the rounds to folks who do maintain blogs and add my 'couple of coppers' worth now and then. :)Delete
Thank you all for your supportive comments, and so sorry to those that have let me know they have difficulty posting here :( I do love and appreciate your feedback, as I never know who's reading my silly ramblings ! I am testing out posting... here goes :)ReplyDelete
Hi Julie! How cool that your little blue bug is from NC!! I don't have a blog - am related to the "multiple myeloma for dummies" crew. Found your blog through them and have been following for quite a while. Keeping you in my prayers. :)ReplyDelete
That is so much!!!! The best thing about this all is how well you know your body and how to use each and every medication!!!!ReplyDelete