KYPROLIS IV Chemo Finally Happened Yesterday...and Today... Forward on to Infinity!
My WBCs improved a bit. Whites up to a "whopping" 2.4 .. LOL!
ANC up to a "huge" 1.4.. LOL!
Platelets considered "Adequate"
RBCs only 3.64
Etc Etc Etc.
Here we go. Hello Chemo Lab: Mon Tues. Mon Tues. Mon Tues. One week off. Repeat to Infinity...
Enough words. I've bombarded this blog with way too much text recently!
Here's my life in pictures. Thank you for reading, caring,
commenting, and following my cancer adventures. I don't know who many
of my readers are (unless you leave me a comment :), but I thank you for your interest in my crazy myeloma
So scaredy cat me braved up Nov 9, 2015 and in I went. Hoping my low low low immune system would perk up just enough to hook up. Such a symbolic moment for me, as it brings back all my memories of my 2010 IV chemo infusions and my COH inpatient
, I mean life saving challenges and experiences!
I only had an Ensure several hours before going, as... well you know, I'm a GI side effect wimp! The medical staff wasn't happy I didn't have anything in me, but oh well, that's me. They said, drink this, eat these, take this... I complied :)
So in the IV went. Bags of helpful hydration hooked up.
Small dose of Dex down the hatch.
Begin the bags of life saving chemicals
Coursing thru my veins,
Saving life, but killing at the same time. O the irony...
That brown bag...so symbolic.
And then, that emotional lump in my throat happened.
I get weepy, but I pushed it down,
pushing away painful past memories,
accepting painful new realities...
I powered forward
Get in there like "PacMen" and
Pummel and Gobble up all those evil,
waste of time myeloma cells!
Yep, be SCARED myeloma cells
How Jim does "chemo support" lol!
No super powers for sure,
just cancer killing power!
I'm not always very brave
Nor that courageous
I just do what I know I have to do
To STAY alive
This beautiful "Mare's tails" sky I'm able to see
Still so very lucky me
One view, one day, one moment, deep breaths...
One chemo treatment at a time
I dream forward...
Hoping one day to ride the whistling Wind
Bask in the wilds, warmed by radiant Sun
Or guided by the glistening Moon's glowing flashlight
Or splashed by hooves galloping the salty Beach
Or just circling my backyard, my arms embracing
Absorbing the sweet scent of Horse
Hearing, Feeling, Carried by hoof beats gently pounding the Earth
round #2 onward to infinity! I'm coming for you. And you get in my blood stream and do your magical medical chemical job of annihilating myeloma! Give me back my life!
live well, and make a difference somewhere, somehow, with someone or something
as often as you can!
Glad to see your medical team is taking good care of you. Your current treatment is the trial Cecilia was on from March 2010-March 2013.
Praying it runs smoothly & works for you, and praying for good health! Hugs to you! <3 - Arlene
Awww thanks so much for checking in Arlene! I will email you too, as I want to hear how Cecilia is! Thank her please for participating in the Kyprolis trial so that I and countless others can benefit from this fairly new drug. Love and hugs to you and your beautiful family!Delete
Hope it has gone well. Let us know how do you feel?? I'm probably going to start krypolis soon so.. Was it a long infusion? I understand it's only 30 minutes or so?? Did you have to stay longer so they could monitor you?? Did you spike a fever?? Anything??
Best to you ...keep in touch!!
So far so good Christina... but I fear the crash is near. 20mg Dex steroids still propping me up. Infusion is a couple hours as they hydrate then flush and then administer Kyprolis. I asked for the smaller than standard dose to start, maybe that will calm the storm. I'll keep you and everyone posted on my Kyprolis travels :)Delete
Julie- Just wanted to let you know we are thinking of you and your family. We are sending positive thoughts and prayers. We are hoping for a great "whoop-ass" response with minimal side effects. Laurie & Roger TildenReplyDelete
Hi Laurie and Roger! wow! so great to hear from you 2! Thanks for checking in and saying hello and letting me know you're reading my blog! Hoping all is great with you and your family! Thank you for your support! :) xoxoDelete
So far, so good! Hopefully this is a giant step toward dominating your MM and returning to a more normal daily routine! Praying for you and keep us in the loop!ReplyDelete
Hi "loyal Linda", thank you so much for all your support and comments and always checking in on me :) Hoping all is great with you and EZ and your beautiful family! xoxoDelete
Julie,i hope you are doing well with the new chemo drug! it made me laughReplyDelete
when you were joking in the waiting room when your name was called.Keep
trusting and know a lot of people are caring and praying for you.
Hi Ron, thanks for checking in and enjoying my silly writing. Yes, I always still try to have a sense of humor about all of this... it's still such a surreal experience, but some pretty funny moments too! Thank you for all your support, and get out there and golf and and have fun!Delete
Hi Julie, just stopping by to check in as it's the 15th. Im thinking about you today and wondering how you are handling the PAC MAN treatments.. Love to visualize PAC MAN destroying those fucking MM cells.....!!!! How are the birdies? Love you Julie and hope you can enjoy Thanksgiving with your awesome family.. Talk soon, MadonnaReplyDelete
DAMN IT!! It's the 16th not the 15th...Delete
Hey Madonna! Thanks for checking in and being such a loyal follower of my PacMan activities! Hoping this will be my magic for a few months, years :) Get rid of all your cooties, and we can finally get together after all these years! xoxo <3Delete