9 Years = 108 Months
9 Years = 469 Weeks
9 Years = 3,285 Days
9 Years = 78,840 Hours
9 Years = 4,730,400 Minutes
9 Years = 283,824,000 Seconds
Yes, 9 years ago I was diagnosed with Multiple Myeloma.
I still can't wrap my head around it...
I was staring out the window as I writing this, trying to think of something "profound" to say, but I don't feel profound today. I feel a bit empty, blank, incredulous, still consumed in wonderment. How? Why? When? Really? Got to be kidding! Not me! Wrong person. Multiple Myeloma. Terminal Cancer. Incurable Cancer. Treatment for Life Cancer. Multiple Myeloma. Myeloma. Blood cancer. Blood Plasma Cancer. Treatment will save your life. Chemo. Steroids. Stem Cell Transplant. Kaiser. City of Hope. Blood Tests. Chemo. Blood Tests. Chemo. Blood Tests. Stat. Blood Tests. Chemo. Status. My status = Multiple Myeloma. Cancer. Incurable Cancer. Terminal Cancer. Yes, but a "Treatable Cancer".
"Your Bone Marrow Biopsy", from 12.18.2009, has confirmed your diagnosis of "Multiple Myeloma", a Blood Cancer. Blood Plasma Cancer. High Risk IGA type Myeloma." You're young for this diagnosis." I'm so sorry." So sorry to give you this news and diagnosis." Yes, cancer." Multiple Myeloma"... Incurable, but Treatable."
Lots of details. Lots of questions. Numb. Shocked. Incredulous. Not for real. How did this happen. Wrong person. The lab mixed up my blood with someone else, that's what must have happened. Blood Tests, Chemo. Steroids, Chemo, Steroids, Chemo Steroids. Blood Tests. Stat. Blood Tests. Stat. Chemo. Steroids. Chemo, Steroids, Incurable, but Treatable. Radiation. Yes, Radiation for all the holes, lesions, plasmacytomas. Radiation. Lesions. Holes. Plasmacytomas. Fractures. Bone involvement. Too many areas to treat... so much bone involvement. Radiation. Diarrhea. Imodium. Diarrhea. Imodium. Chemo. Steroids.
And here I am 9 years after a deadly diagnosis!. A miracle survivor. More chemo rounds than I can count. Been thru almost all the standard treatments. Revlimid. Kyprolis. Pomalyst. Darzalex. Velcade. Are there any left, after my current old skool Velcade and Cytoxan-Cyclophosphamide, Dex combo? Yes. Thank you brilliant researchers. Yes. But are clinical trials next? What's next... which chemo. And if I choose to stop treatment... how long do I have??? "Months", he said, "not years", as I once thought, when I asked my SCT oncologist, a few years ago. Yes, I will continue to treat. Treat for my forever. But so sick of being sick. So sick of fatigue. So sick of diarrhea. So tired. So fatigued. So tired of not being normal. My previous normal. My life was stolen from me. Wanh, waaanh, waaanh,....
Yes I am so very grateful to still be here. So amazed. So proud. So grateful!!!
Wishing all of you the happiest of New Years, and may 2019 bring good things to your life, and your loved ones. Wishing you good health, no drama, dreams fulfilled, and a meaningful life. Thank you for reading, following my story and your wonderful comments. I'd love to know how long you've been reading my blog, and following my story. 9 years is a long time to be writing :)) I'm pretty amazed when I look back on all my posts, and think about all my thoughts and stories living here on this blog!
Here's all my 12.30 anniversary posts:
What a wonderful little Celebration of Life,
9 years of addition life, I never thought I'd achieve.
Thank you to all my wonderful Doctors, Nurses, Medical Staff
Medical Science Researchers, my family, and friends near and far!
Hi Julie, I have not missed one post you have posted since 2009. I have read them all. Sometimes I laugh with you, sometimes I cry with you, sometimes I am mad that this has happened to you, and sometimes I am somber thinking about how you have survived and I can only say I am amazed by you.ReplyDelete
Awww CB!!! This is sooooooo sweet! Wow, you sure are a LOYAL reader, and probably win the award for most loyal, consistent, reader! Thank you so very much for caring as you do!! And thank you so much for your kind words of appreciation and support! Hope you are doing well, Happy New Year 2019 xoxoDelete
congratulations on 9 years and here's to many more. you are a miracle and I'm glad to know youReplyDelete
Aww, thank you for your kind words of support, and I too, am so glad we found each other in this crazy Myelomaville world Matt! You're a miracle too, just a bit behind me in years, right. And actually MORE of a miracle with your amazing trek to Kilimanjaro !!! :))Delete
I continue to enjoy your posts. You write so well and have a wonderful way of looking at things. As I've mentioned before, my husband has had MM for many years and is doing quite well. I concentrate on that! Here's a great 2019.ReplyDelete
Awww, thanks so much for letting me know you continue to enjoy my posts Wendy! Thank you for your kind words of appreciation and support! Hoping your hubby continues to do well! How many years, and which treatment is he on, if any? Happy New Year 2019 :))Delete