I'm way too beat up to write much, but I had to update, so you all don't have my other post as what's actually going on...
Later on Thursday night, APRIL 1, I had two CRAZY things happen.
1- I suddenly got a NON STOP bloody nose hemorrage on my Left side. My night was absolutely miserable, and I thought, ok Myeloma, this is IT, you got me, we're done... I won't describe all the bloody details, but let's say I went thru several several boxes of Kleenex all night long, bleeding out and and choking on huge globs and clots in my throat, that I had to spit up, almost aspirating on... I really thought I would Hemorrhage to death. Yes, I know, call my Dr, go to ER... but why, for what? What are they going to do different for me there, that I can't do at home... except give me more bags of Platelets and Blood, but also get Pneumonia or Corona, etc at the same time...
So I suffer at home,...
2- When I woke up, and you won't believe this... I suddenly and I mean suddenly realized I had developed a crazy giant soft Hematoma Extramedually tumor mass on my Right side collarbone area like I developed one my Right side, last summer on Elotuzumab!!! This THING seriously was going to choke me, just like before, last summer/fall. It grew between the Left side collarbone and the neck. What the heck! This Bleeding and Monster Tumor stayed there until I took steroids (Sat 4.3), after another night bleeding out, and choking, I took two 4mg Dex Steroid pills, knowing they are prescribed for both situations like this,... as anti inflamatories...
OMG is Blenrep going to do a similar thing to me as Elotuzumab did, which I mention all the time, thinking it caused the evolution of my Extramedullary Myeloma???
I slept most of the day, tried to eat this evening, Scott came over to do the animal chores and take out bags and bags of bloody kleenexes lol. So how am I doing right now, Weak, tired, overwhelmed, so done with being SICK all the time, ready to try nothing but Steroids, but scared to do that. As I discuss with my adult kids all the time, Am I just existing and prolonging death, or am I living and prolonging life, in hopes that a "miracle might happen, and I can survive this EVIL DEVIL of a cancer. Just had NO idea what would eventually happen to me :((
Feeling stuffed from 2 eggs, 1 avocado, exhausted from the 48 hours of nose hemoraging, but good news, I think the Steroids are helping. We'll see...
Just had to update all of you, as I feel and look awful and seriously cannot believe what is happening to me :((((
Get to a lab and have your INR checked! STAT!ReplyDelete
Could be some of your meds are causing a "thinning" of your blood!
This might be life-threatening, Julie!
Hi S, yes you are correct. Blenrep and Velcade cause Thrombocytopenia. I knew this was a medication risk, Drs did too. Most of my Myeloma meds cause a super low WBC and Thrombocytopenia i. https://www.blenrep.com/Delete
Every Myeloma med, whether Immunotherapy or chemical chemo, has very intense side effects. Eye issues with Blenrep are a "Black Box warning". Have specialized eye drops, as do all on Blenrep. New FDA approved treatment from last year. Thank you for caring as you do. Are you a Myeloma patient.
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