Cowgirl Up!!! ... Does Horse Poop Cause Cancer??

Thursday, April 8, 2021

Happy Birthday Best Daughter, Hello ER today!!! We were in the Hospital together 33 years ago!

 4.8.21

33 years ago, I was in the Hospital having my daughter Alissa. Ironically today, I'm headed back to the Hospital, this time ER, the place I've been trying to avoid, but can't now, due to needing 2 bags of Plateles, and 2 bags of Blood. My levels are so ridiculously LOW, it's RIDICULOUS!!!! Stupid Myeloma, I just hate you so much!. Myeloma trying to kill me in any way it can, and Covid not allowing us to celebrate together. Would have had a party in the Hospital ER with all the kids while getting the Blood Products. Oh this life is so IRONIC, right!!! What a difference 33 years makes!!!! 

                            
My daughter and I were in Hospital together, 33 years ago! 
Today, a totally different story. Stupid Myeloma

 

So much has gone on in the last 24 hours..., medical communication misunderstandings, etc. I should have had all the complex blood typing yesterday so I could have done the Blood Transfusions at the Chemo Lab today, not E frkn R!!! But then again, the amount of Blood Products I need to keep me alive, take too much time for the Chemo Lab, as they close a 5pm, so I'll be in the ER Hospital all night long. My blood has become so complex because of all the chemo, immunotherapies, 2010 stem cell transplant, etc, it has to be put thru the dishwasher and radiated like non other!  Can you believe all of this? I can't! Can you please help me STOP this insane movie. I do not want this to be my life!!!!

So all Bday Celebrations will have to wait, I will hope I will survive all the COOTIES in the Hospital ER, and hope I make it outta there. I told the kids, if it looks like I'm passing off to the next realm, get me the heck outta there, sign all the papers, pull that plug on the Blood and get me home. Or put the IV stand in the car, and let's gooooooo... Party at Visneyland this weekend if that happens. Should I be in a Hospital bed in the backyard, or inside the house, looking out? 

Leaving soon and the laughs are that I ate Olive Garden leftovers from last night. Fk u Abdominal Alien Mass, I ate today after coming home from the Blood Lab crazy blood typing labs, and ate. Yes move aside you resident softball size Extramedullary waste of my body space Mass, I had grilled chicken and grilled broccoli, and with my GI luck, I'll probably have to poop when I arrive at ER. Hopefully not before LOL. One time when I had a bag of hydration with my chemo and blood products, and a bottle of my personal water, I stood up from the chemo chair.... and oooppps I "watered the floor" LOL. Scott could not believe it when he picked me up, so from now on he brings a few doggie pee pads for me sit on... ahahahha, or the Nurses gives me some from my chemo chair station. Overreaaction I'd say, my pee is so clean and chemo'd it probably cleansed his seat, ahahahahaha!

OMG, can all this be REAL??? Come join me in ER, let's make it a PARTY... (Steroids talking)

Happy Birthday to Alissa today, Scott on March 25 and wife Ashley on March 4. Thank goodness I made these landmarks!!! 

Sorry for my Fk u's, makes Scott crazy as I was the "perfect mom" lol. Alissa just laughs and says, "your're dying Mom, so it's ok, you're allowed to cuss," , she encourages me to cuss, and we laugh together :)) 

Alissa, "ok Mom, time to go "Party with your Platelets!"



8 comments:

  1. In the end all my grandma used to like to say was, "ah shit." It's ok. Cuss away. You are so loved.

    ReplyDelete
  2. Well F$%K, my dear Fence Friend. I never cuss either, but this deserves a potty mouth. I'm sorry you had to go in. I know how much you tried to avoid that. I know I've told you before, but it needs to be repeated...thank you for helping me to become a 50-year-old college graduate. I don't think I could have ever gotten started if not for you, your help, encouragement, and support. The first steps were so difficult and you grabbed my hand and gave a tug. It means so much to me. When you get home, I'll pass the fence and sit on the porch with you. I love you. You are fabulous. Sending you dirt road love.
    Kelly

    ReplyDelete
  3. BTW the above comment was from me. David.

    ReplyDelete
  4. Julie,
    I'm praying for your return home and your comfort. Love you! I have the same story - if it wasn't for you I would not be a college graduate either. A gesture I will always treasure - not to mention the help you gave both my kids and the money you saved us. Hugs, Jennifer J.

    ReplyDelete
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  8. WHAT A GREAT MIRACLE THAT I HAVE EVER SEE IN MY LIFE. My names are Clara David I’m a citizen of USA, My younger sister was sicking of breast cancer and her name is Sandra David I and my family have taking her to all kind of hospital in USA still yet no good result. I decided to search for cancer cure so that was how I found a lady called Peter Lizzy. She was testifying to the world about the goodness of a herbal man who has the roots and herbs to cure all kinds of disease and the herbal man's email was there. So I decided to contact the herbal man @herbalist_dr_sakura for my younger sister's help to cure her breast cancer. I contacted him and told him my problem he told me that I should not worry that my sister cancer will be cure, he told me that there is a medicine that he is going to give me that I will cook it and give it to my sister to drink for one week, so I ask how can I receive the cure that I am in USA, he told me That I will pay for the delivery service. The courier service can transport it to me so he told me the amount I will pay, so my dad paid for the delivery fee. two days later I receive the cure from the courier service so I used it as the herbal man instructed me to, before the week complete my sister cancer was healed and it was like a dream to me not knowing that it was physical I and my family were very happy about the miracle of Doctor so my dad wanted to pay him 5 million us dollars the herbal man did not accept the offer from my dad, but I don't know why he didn't accept the offer, he only say that I should tell the world about him and his miracle he perform so am now here to tell the world about him if you or your relative is having any kind of disease that you can't get from the hospital please contact dr.sakuraspellalter@gmail.com or WhatsApp him +2348110114739 you can follow him up on Instagram @herbalist_dr_sakura visit his website https://drsakurahealthclinic.wixsite.com/website

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My Story... How my MM was diagnosed

October/November/December 2009...

Most of my life I was VERY presumptuous about being healthy, taking my (mostly) GOOD health for granted...
I was committed to annual check-ups for all of us, and so late October 2009, my daughter and I went for our annual and very routine physicals.

Surprise, surprise... my routine blood tests revealed extreme Anemia, significant White and Red Cell issues, low Platelets, and a variety of other CBC red flags! I was (stupidly) not worried when my GP doc left repeated phone messages to contact him, and when we did speak, I (stupidly) requested postponement of his referral appointment to the Hematology Dept until the end of the Fall academic term.

Arriving for my first appointment Dec 14, 2009, I was confronted with the check-in sign that read: "Hematology/Oncology"... What? Nooooo! not me... I must be in the WRONG place! And so my diagnosis journey began with vials and vials of blood drawn "stat", urgent Dr consultations, a surprise and painful Bone Marrow Biopsy, a full body Skeletal Scan, more blood tests stat, and then on 12.30.2009... THE revealing meeting... the "huh-what" moment ... the confirmation diagnosis that I, Julie, have CANCER!!!

Happy New Year to me, I just learned a new vocabulary word:
Multiple Myeloma!!! MM, Multiple Mye-what-loma!!!

January - June 2010

My medical metamorphosis began.
I read, and read, and read and researched and researched MM. I trusted my expert Oncology/Hematology team's plan and began my "New Normal" as a cancer patient.
My treatment plan was developed to include powerful Dexemthesone steroids paired with Revlimid chemotherapy, with the plan to be hospitalized for an Autologous Stem Cell Transplant July 2010.

I began living "one day at a time" like never before.
Jim was a wreck. Alissa and Scott were stunned; family and friends shocked.

Me... Cowgirl Up! I got back in the saddle and knew I was in for the ride of my life!
I did well on my initial pill-form Revlimid Chemo, "roid-rage" Dex Steroids and other supportive meds. I am forever deeply grateful and appreciative for all the love and support from everyone in my personal and professional life! I thank all of you for working along with me, and allowing me to continue to lead a semi "normal" life!
YOU have helped save my life!

My treatment trail ride forks to City of Hope hospital as I will saddle up beginning June 9, 2010 for a new rodeo called an Autologous Stem Cell Transplant!
Ye-Ha, let the adventure begin!

Chemical Warfare...

January 2010 - May 2010:
My initial chemo regimen:

Pill form Chemo= Revlimid (10mg, 15mg capsules)
Pill form Dexamethasone Steroids (40 mg, 4 days on, 4 days off!
Omeprazole for steroid acid reflux
Mepron (looks like yellow finger paint) Anti-fungal, Anti-viral, etc for my very compromised immune system
B-12
.81 Aspirin to prevent DVT, Revlimid complications
Allopurinol- keeping the kidneys healthy
Acyclovir- anti-Shingles, anti-viral

June 2010:
High dose IV Cytoxan chemo
Neupogen to build up stem cells for Apheresis, stem cell harvest, which was very successful, as City of Hope was able to collect 9.5 million of my own stem cells

July 2010 Hospitalization:
Two days of high dose Melphalan chemo
Then July 5, 2010 = my Autologous Stem Cell transplant infusion!

And you can read my whole story from that point forward in this blog!


What is multiple myeloma?

What is multiple myeloma?

Cancer starts when cells in the body begin to grow out of control. Cells in nearly any part of the body can become cancer, and can spread to other areas of the body. To learn more about how cancers start and spread, see What Is Cancer?

Multiple myeloma is a cancer formed by malignant plasma cells. Normal plasma cells are found in the bone marrow and are an important part of the immune system.

The immune system is made up of several types of cells that work together to fight infections and other diseases. Lymphocytes (lymph cells) are the main cell type of the immune system. The major types of lymphocytes are T cells and B cells.

When B cells respond to an infection, they mature and change into plasma cells. Plasma cells make the antibodies (also called immunoglobulins) that help the body attack and kill germs. Lymphocytes are in many areas of the body, such as lymph nodes, the bone marrow, the intestines, and the bloodstream. Plasma cells, however, are mainly found in the bone marrow. Bone marrow is the soft tissue inside some hollow bones. In addition to plasma cells, normal bone marrow has cells that make the different normal blood cells.

When plasma cells become cancerous and grow out of control, they can produce a tumor called a plasmacytoma. These tumors generally develop in a bone, but they are also rarely found in other tissues. If someone has only a single plasma cell tumor, the disease is called an isolated (or solitary) plasmacytoma. If someone has more than one plasmacytoma, they have multiple myeloma.

Multiple myeloma is characterized by several features, including:

Low blood counts

In multiple myeloma, the overgrowth of plasma cells in the bone marrow can crowd out normal blood-forming cells, leading to low blood counts. This can cause anemia – a shortage of red blood cells. People with anemia become pale, weak, and fatigued. Multiple myeloma can also cause the level of platelets in the blood to become low (called thrombocytopenia). This can lead to increased bleeding and bruising. Another condition that can develop is leukopenia – a shortage of normal white blood cells. This can lead to problems fighting infections.

Bone and calcium problems

Myeloma cells also interfere with cells that help keep the bones strong. Bones are constantly being remade to keep them strong. Two major kinds of bone cells normally work together to keep bones healthy and strong. The cells that lay down new bone are called osteoblasts. The cells that break down old bone are called osteoclasts. Myeloma cells make a substance that tells the osteoclasts to speed up dissolving the bone. Since the osteoblasts do not get a signal to put down new bone, old bone is broken down without new bone to replace it. This makes the bones weak and they break easily. Fractured bones are a major problem in people with myeloma. This increase in bone break-down can also raise calcium levels in the blood. (Problems caused by high calcium levels are discussed in the section “How is multiple myeloma diagnosed?”)

Infections

Abnormal plasma cells do not protect the body from infections. As mentioned before, normal plasma cells produce antibodies that attack germs. For example, if you developed pneumonia, normal plasma cells would produce antibodies aimed at the specific bacteria that were causing the illness. These antibodies help the body attack and kill the bacteria. In multiple myeloma, the myeloma cells crowd out the normal plasma cells, so that antibodies to fight the infection can’t be made. The antibody made by the myeloma cells does not help fight infections. That’s because the myeloma cells are just many copies of the same plasma cell – all making copies of the same exact (or monoclonal) antibody.

Kidney problems

The antibody made by myeloma cells can harm the kidneys. This can lead to kidney damage and even kidney failure.