Cowgirl Up!!! ... Does Horse Poop Cause Cancer??

Thursday, April 1, 2021

Wish It was April Fool's Day on You Myeloma!


Hello Friends and Loyal Readers- 

 I used to post a silly April Fool's blog, but not much is funny or silly in my life anymore. I'd say something about being "Cured", and I don't have to do chemo or treatments anymore, etc. hahahaha what a joke on me! So no Jokes today, here's the real life Update:

First of all, thank you so very much for all your loving, caring and encouraging comments. You do really very much "matter" to me, and what you write and comment, I appreciate you being out there and connecting with me, very very much!

Happy Spring, Happy Easter 2021

So for as long as Myeloma has been affecting my life, I was very very fortunate that I did not experience ALL the Myeloma symptoms ALL the time, nor was I completely aware of all the individual side effects of all my CBCs, bone damage, tumors, fractures, etc. I was aware what meds to take, side effects from them, and I read so much, and I asked so much, but it all still remained so surreal to me, and it always seemed to somewhat resolve itself with time, medication or a chemo change. I was "tortured" in intense incriments, surprised by what my body could do to me, based on the where the attack was. Each symptom was different, each side effect was different, but it wasn't my whole body, all the time thankfully! And again, there always was some sort of resolution eventually, be it GI meds, body pain meds, bone pain meds, fracture pain relieved by Radiation, etc.  Hopefully I am not diminishing the depth and extent, and pain of the past 11 years, as it was truly awful. but what I have been going thru since last summer 2020, just gets worse and more inconprehensible.

At this time, my IGA Immunoglobulin labs are sooooooooooooooooooo HIGH the testing machine cannot even measure it. Normal is between 70-400 and shows at  >  yes, a greater than sign  >  .... now stuck at   > 5933. 


Ha! Maybe this is my Joke on me LOL... >  >  >

Here's my other labs:


Never had Light Chain issues before.
This is insane!


Normal is Zero!

Kid you not friends! If I was to just TELL you this, you may not believe me. What's that saying- Numbers Don't Lie! Again, I never knew how weak the human body can become without both Red and White blood support, not to mention FOOD...

My crazy Abdominal Alien has taken up so much room, I can hardly eat. I am hungry psychologically, and I feel hungry as I write, but it is soooooo uncomfortable to feel full and bloated with basically nothing in my stomach. I made myself 2 eggs earlier and 1 piece of raisin cinnamon bread, and earlier had a protein shake box with some pills, vitimins, and know I should drink more water, but I just can't stand the fullness feeling. Dang you Extramedullary Myeloma. Would just like to insert a needle in you and incinerate you. Wouldn't that be Amazing LOL! 

My memory is going too, not enough oxygen in the blood going to the brain LOL....  So if I recall correctly, last week was putting me on "Pallative Care", and I soon received a "light weight" wheelchair  (just like Jim), and then this week they sent a home health care Nurse to do my Labs at home (just like Jim). 
Yes, those CBC lab results were alarming, so the the Urgent Care, ER Doctor called me in the evening and said what I am told all the time.... " Get to ER now"... your labs are not good, they're dangerous".... I thanked her asked if she had seen my entire myeloma history, and that I was a 11+ year Myeloma survivor, and my Labs are always LOW, Blah Blah Blah..... I nicely told her I won't go to ER, I will die at home, and I'm scheduled for chemo the next day, so they will call me and give me direction as to what infusions, meds are next, and what we'll do about the lousy labs. She was very kind, and I might have been a bit edgy, as I think I had fallen asleep on my old lady recliner chair LOL...

So yes indeed, chemo Nurse calls first thing in the morning, that they wanted me to get the chemo clinic asap for 2 bags of Platelets, before my Velcade injection. Ugh, that was 9:00ish I think. Fortunately I had already taken my split dose of 20mg Dex Steroids, so I was ready to be infused in a few hours. I let my adult kids know, and they were so amazing to plan together and split the ride there and back. I received 2 bags of Platelets no problem. No reaction, thank goodness. Then Velcade shot time. I still have big bruise where I asked my Nurse to find that stikn Abdominal Alien Mass a few weeks ago, and shoot it with the Velcade shot LOL. Well we did the same thing again, and I have 2 bruises now on the right side, and have hopefully pissed of the Mass... eh, who cares at this point right. Have a little fun. Play some "hit that Alien Mass Pin Ball" ... ahahahahhaaaa.

This was bag 2, almost done. 

Blood last week
2 bags

I used to think and say how caring for my hubby Jim was practice for my furture, and some would get upset with me, and say that was a long time away, as Alzheimers is very different than cancer. Well so much of what's happening to me physically, happened to Jim... so ironic, so sad. All the help we gave him, I am now needing. Hard for me get in a car, I use the canes I gave him, I use the wall support bars and floor step ups Scott installed for him, I fear going outside alone, fear of falling inside and out, trouble getting up from the toilet, but Scott's bars are there, I don't have much of an appetite, drink mainly protein shake boxes, even though all food sounds and looks good, can't do many, if any, chores around here, walking from one room to another is a great effort, doing anything is a great effort, can barely get in and out of our bed, unlocking the gates for hay delivery today was an effort, feeding the little doggies is an effort, anything jumping on me hurts and I bleed, writing and talking is an effort, I sorted my laundry a while ago in color piles, and it's still there like that weeks later. I try different foods and they don't taste as I anticipated. I hear from friends wanting to stop by, and mentally it sounds wonderful, but so physically draining. Opening doors and windows feels what you all feel like when working out a Gym lol. So I don't do anything, anymore trying to prevent further pain and drama. I opened a window I had to lean up and into over the kitchen sick, and pulled muscles, nerves, or fractured something. Steroids help suppress the pain, but on non-steroid days I eat Tylenol (don't worry I only do about 2500 a day) then do Flexeril at night. My Drs, Pharmacist, Nurses etc always ask why I don't do the stronger meds, well I don't want to be mentally unsharp. At least I still have brain and analytical self. 

AND OMG, I FORGOT TO MENTION THE "BIGGEST" PART OF ALL OF THIS... I STOPPED DARZALEX AND POMALYST AND BEGAN BLENREP LAST WEEK. The infusions are every 3 weeks, (so it must be pretty powerful stuff), continue on Velcade, and 40mg Dex Steroids weekly, which I will never stop, as it helps me in so many ways with pain, and preventing chemo, immunotherapy, side effects. I will never understand why Drs don't prescribe it with all infusions and for all cancer patients suffering with all the awful side effects. Anyway, thankfully I haven't had any of awful and feared side effects. Some Nausea, loss of appetite, etc, but that was there before anyway... But if you "know me", you know I am very OCD about being cautious and careful on chemo days, and for a few days afterwards, so I don't get sick. I did try to eat Wood Ranch with the kids last night (a week after Blenrep), something I haven't allowed myself to do for weeks. I had Broccoli, a very small steak, a little Mac n Cheese, a roll. Have been ok, and ate today too. THANK YOU STEROIDS. I did have several "cleanses", but nothing new with that LOL. And I've been doing the required Eye Drops 2x per day, and so far, so good. We'll see. All I want is the Extramedullary Masses to shrink, so I be physically comfortable again.

Lovely selfie lol
I was really tired and achy,
and also didn't fluff my hair much. 
Funny how my Nurses always ask how I am,
and know by how I look. I tease them that one day
I will come in right out of best and scare the heck out of them :)))

Well it's taken me all day sporadically to write this, so I have to quit and sit and watch "Heartland" until I fall asleep. If I can't ride my own horses, and see beautiful scenery, then I can binge watch it on TV. Never did this before, such a new lifestyle for me. If you are a "horsey" person, you'll enjoy this series a lot. It's not the typical "adult" series, not a lot of scary drama, etc, but situational people issues, beautiful scenery, lots and lots of beautiful horses and ranches. You can watch it with your kids and grandkids, that's how "G" rated it is :))))) 

Here are some links to random things and shows I've been watching lately, if i'm not asleep or in the bathroom LOL

Walmart grocery pick up is amazing. My kids pick up for me. I used to eat baby food years ago when I just don't feel like heavy roughage foods. Just ordered a bunch and we'll see how that goes lol. 

I'm always looking up medical info all the time, and prescriptions, and just anything that comes into my mind relative to my limited life lol, but hoping to do one day... hello Hawaii, coastal beach hotels, dude ranches, etc, lol 

Always on the Myeloma sites, keeping up with research and new FDA approved meds:

And all the other legit clinical, medical sites

I'll probably be editing this for the next week, and commenting on your amazing comments too :))

Thank you everyone for caring as you do!


  1. Hi Julie....I'm thinking about you. I can relate to what you're going through since as you may recall we were both diagnosed in December 2009. Yes, its been a REALLY ROUGH eleven years...for both of us!
    Please contact me any time you like via email if you want...just to trade treatment tips or to just to talk about MM in general!

    Hang in there best you can!

    Steve in Ohio

  2. Thank you Steve for caring, reading as you do. What treatment are you on now? Whay type of MM are you?. Congrats on your 11+ years. Sounds like you're doing well. I recall your story. Will read again. Your MM is in your bones, not Extramedullary, right. Hope all is good with your and your family, and you can be out and about enjoying!! Julie :))

  3. I suspected my wife of cheating on me but I never had any proof. This went on for months, I didn't know what to do. i was so paranoid and decided to find a solution, i saw a recommendation about a PI/Hacker and decided to contact him. I explained the situation about my wife to him and he said he was going to help me.I gave him all the informations he required and afterwards i received all my wife’s phones Text messages and calls, I was hurt when i saw a picture of my wife and her lover. I feel so bad about infidelity. but i am glad Mr james was able to help me get all this information, you can contact him through Gmail : (Worldcyberhackers)


My Story... How my MM was diagnosed

October/November/December 2009...

Most of my life I was VERY presumptuous about being healthy, taking my (mostly) GOOD health for granted...
I was committed to annual check-ups for all of us, and so late October 2009, my daughter and I went for our annual and very routine physicals.

Surprise, surprise... my routine blood tests revealed extreme Anemia, significant White and Red Cell issues, low Platelets, and a variety of other CBC red flags! I was (stupidly) not worried when my GP doc left repeated phone messages to contact him, and when we did speak, I (stupidly) requested postponement of his referral appointment to the Hematology Dept until the end of the Fall academic term.

Arriving for my first appointment Dec 14, 2009, I was confronted with the check-in sign that read: "Hematology/Oncology"... What? Nooooo! not me... I must be in the WRONG place! And so my diagnosis journey began with vials and vials of blood drawn "stat", urgent Dr consultations, a surprise and painful Bone Marrow Biopsy, a full body Skeletal Scan, more blood tests stat, and then on 12.30.2009... THE revealing meeting... the "huh-what" moment ... the confirmation diagnosis that I, Julie, have CANCER!!!

Happy New Year to me, I just learned a new vocabulary word:
Multiple Myeloma!!! MM, Multiple Mye-what-loma!!!

January - June 2010

My medical metamorphosis began.
I read, and read, and read and researched and researched MM. I trusted my expert Oncology/Hematology team's plan and began my "New Normal" as a cancer patient.
My treatment plan was developed to include powerful Dexemthesone steroids paired with Revlimid chemotherapy, with the plan to be hospitalized for an Autologous Stem Cell Transplant July 2010.

I began living "one day at a time" like never before.
Jim was a wreck. Alissa and Scott were stunned; family and friends shocked.

Me... Cowgirl Up! I got back in the saddle and knew I was in for the ride of my life!
I did well on my initial pill-form Revlimid Chemo, "roid-rage" Dex Steroids and other supportive meds. I am forever deeply grateful and appreciative for all the love and support from everyone in my personal and professional life! I thank all of you for working along with me, and allowing me to continue to lead a semi "normal" life!
YOU have helped save my life!

My treatment trail ride forks to City of Hope hospital as I will saddle up beginning June 9, 2010 for a new rodeo called an Autologous Stem Cell Transplant!
Ye-Ha, let the adventure begin!

Chemical Warfare...

January 2010 - May 2010:
My initial chemo regimen:

Pill form Chemo= Revlimid (10mg, 15mg capsules)
Pill form Dexamethasone Steroids (40 mg, 4 days on, 4 days off!
Omeprazole for steroid acid reflux
Mepron (looks like yellow finger paint) Anti-fungal, Anti-viral, etc for my very compromised immune system
.81 Aspirin to prevent DVT, Revlimid complications
Allopurinol- keeping the kidneys healthy
Acyclovir- anti-Shingles, anti-viral

June 2010:
High dose IV Cytoxan chemo
Neupogen to build up stem cells for Apheresis, stem cell harvest, which was very successful, as City of Hope was able to collect 9.5 million of my own stem cells

July 2010 Hospitalization:
Two days of high dose Melphalan chemo
Then July 5, 2010 = my Autologous Stem Cell transplant infusion!

And you can read my whole story from that point forward in this blog!

What is multiple myeloma?

What is multiple myeloma?

Cancer starts when cells in the body begin to grow out of control. Cells in nearly any part of the body can become cancer, and can spread to other areas of the body. To learn more about how cancers start and spread, see What Is Cancer?

Multiple myeloma is a cancer formed by malignant plasma cells. Normal plasma cells are found in the bone marrow and are an important part of the immune system.

The immune system is made up of several types of cells that work together to fight infections and other diseases. Lymphocytes (lymph cells) are the main cell type of the immune system. The major types of lymphocytes are T cells and B cells.

When B cells respond to an infection, they mature and change into plasma cells. Plasma cells make the antibodies (also called immunoglobulins) that help the body attack and kill germs. Lymphocytes are in many areas of the body, such as lymph nodes, the bone marrow, the intestines, and the bloodstream. Plasma cells, however, are mainly found in the bone marrow. Bone marrow is the soft tissue inside some hollow bones. In addition to plasma cells, normal bone marrow has cells that make the different normal blood cells.

When plasma cells become cancerous and grow out of control, they can produce a tumor called a plasmacytoma. These tumors generally develop in a bone, but they are also rarely found in other tissues. If someone has only a single plasma cell tumor, the disease is called an isolated (or solitary) plasmacytoma. If someone has more than one plasmacytoma, they have multiple myeloma.

Multiple myeloma is characterized by several features, including:

Low blood counts

In multiple myeloma, the overgrowth of plasma cells in the bone marrow can crowd out normal blood-forming cells, leading to low blood counts. This can cause anemia – a shortage of red blood cells. People with anemia become pale, weak, and fatigued. Multiple myeloma can also cause the level of platelets in the blood to become low (called thrombocytopenia). This can lead to increased bleeding and bruising. Another condition that can develop is leukopenia – a shortage of normal white blood cells. This can lead to problems fighting infections.

Bone and calcium problems

Myeloma cells also interfere with cells that help keep the bones strong. Bones are constantly being remade to keep them strong. Two major kinds of bone cells normally work together to keep bones healthy and strong. The cells that lay down new bone are called osteoblasts. The cells that break down old bone are called osteoclasts. Myeloma cells make a substance that tells the osteoclasts to speed up dissolving the bone. Since the osteoblasts do not get a signal to put down new bone, old bone is broken down without new bone to replace it. This makes the bones weak and they break easily. Fractured bones are a major problem in people with myeloma. This increase in bone break-down can also raise calcium levels in the blood. (Problems caused by high calcium levels are discussed in the section “How is multiple myeloma diagnosed?”)


Abnormal plasma cells do not protect the body from infections. As mentioned before, normal plasma cells produce antibodies that attack germs. For example, if you developed pneumonia, normal plasma cells would produce antibodies aimed at the specific bacteria that were causing the illness. These antibodies help the body attack and kill the bacteria. In multiple myeloma, the myeloma cells crowd out the normal plasma cells, so that antibodies to fight the infection can’t be made. The antibody made by the myeloma cells does not help fight infections. That’s because the myeloma cells are just many copies of the same plasma cell – all making copies of the same exact (or monoclonal) antibody.

Kidney problems

The antibody made by myeloma cells can harm the kidneys. This can lead to kidney damage and even kidney failure.