10 years ago today...
Yes 10 years ago December 14, was my very first Hematology Oncology appointment at Kaiser.
After extensive, surprise, extra detailed blood tests, beyond the "normal, regular" labs done for "routine annual physicals", I was referred to Hematology... Hema... what, I questioned??? They must have mixed up my labs with some sickie with a similar ID number...
Oh yes, I was the sickie, but I didn't know it...
I'm pretty sure my GP doctor knew what was up, as he was super Urgent with my Hematology referral, which I delayed from November to December, thinking, ya ya, I'm ok, nothing wrong with Super Woman Julie... just super fatigued, just bleeding out a lot, in several places daily, just breathless, just achy, just so tried I could hardly function, just lots of weird headaches, dizziness, bone aches, so thirsty all the time, always getting sick from all the college cooties... ya ya, nothing wrong with me... I'll just drink more Red juices to bump up my blood strength, and maybe eat a steak or 2 more often. Nothing wrong with me, but what the heck, I'll go to this appointment in Hema-whaaaateeevvvverrrr.....
When I checked in, I even said to the super nice check in girl... "I'm sure I'm in the wrong Dept", and "I'm sure this is a mistake", "I'm sure I don't belong in this Dept"... and "how weird, Oncology is in this Dept too". "Oncology... hmmmm... isn't that Cccccccancer related"... Yep, I'm for sure in the WRONG Dept....
I checked in.
I waited for my appointment.
I met a new lovely doctor.
Who talked to me about my labs, asked me how I was feeling. Took a lot of time asking me about symptoms, which of course I down-played.
She sent me for more labs that day.
Then scheduled me for more appointments with her.
Then sent me for more labs after those labs... "Stat"... what's Stat?
Then called me one day, and I actually answered my cell...
She said certain labs showed I was very sick. I should be hospitalized. I need "blood products"... huh??? Me? No, must be a mistake. Jim is upset I'm not taking all this seriously. I refused hospitalization. I refused blood products. I'll just drink more Red juices. Eat more steak. Wow this is fun, I can eat and drink what I want, and still Lose Weight!!! I'm fine....
More Labs, more phone calls. More symptoms. More ignoring it all. I was just fine. Bleed on!
End of the semester stress. Student Finals. Stress. Lots of desperate students. Stress. Holidays coming. Stress. New Years coming. Lots going on. Stress. I'm not going to the hospital. That's for sick people. I'm not sick. I just have some weird symptoms. Maybe just end of the year stress. I'll just drink more Cranberry Juice and eat more Steak...
And then I was scheduled for a Bone Marrow Biopsy... a What??? I think Scott Googled it and said, "Wow Mom, that's a really painful procedure"... I don't remember if I Googled it... My first BMB was scheduled for December 18, 2009....
Congratulations on ten years and here's to many many more! You're awesome Julie and I'm lucky to know you. Funny I also thought I needed to eat more steak when I started feeling weak.ReplyDelete
Thank you Matt! We are Warriors! And members of the "very lucky to still be alive club"! Next time we meet up, we're having STEAK lol lol :)) xoxoDelete
It's hard to believe it's been over 10 years since we stood by the flagpole at COC and gave you all the scarves, head coverings, hats! Congratulations on reaching 10 years with Myeloma. I'm sure your positive, spunky, honest attitude has played a part in you being able to succeed at beating Myeloma for 10 years. Here's to the next 10 years of blogs, comments, transparency and love. You are truly amazing, Julie. Best of holiday moments to you and your family at Christmas and always. Sending love and hugs.ReplyDelete
Awww Carol, you are so sweet to continue to read and support me :)) Wow, what an amazing and fun memory that is. I loved the "scarf party" and was so surprised and overwhelmed with gratitude, with everyone there, and the adorable scarfs!! I still have all of them, and treasure the memory and individual scarves! I wish every one of them was signed, so I would know who gave me which one.Delete
Thank you Carol, for all your continuing support and encouragement to carry on physically and also continue to write and post.
How are you, how is your status,... update me here or a private message :)) Let's do lunch in 2020 to celebrate our longevity! Happy Holidays to you and your family sweet friend!! xoxo
Well, Julie, you've become a "star", or so I've read. In your very own dram-edy. Typical California thinking. You are incurable, yet have dragged this on, gleefully, for ten years. Good Work, Counselor. What an education you have given us. My new year's wish for you is that you live a long and meaningful (continued) life but learn about victim-ReplyDelete
hood in the meantime. Obnoxious Jim
Hi "Obnoxious Jim" lol... do we "know" each other? Regardless, I do appreciate you reading and commenting. How long have you followed my blog? Are you a myeloma or other cancer patient? Not sure how to take your comment, but I appreciate your honesty and candor. I will take it in positive way of posing thought-provoking ideas!Delete
Yes, I am quite the Victim of Circumstances now!
Not easy going from a very Independent, Positive, Optimistic, In Control, Take Care of Everyone, Everything person to a Victim of Illness, completely out of my control. Yes, I am a Victim of my own Biology gone wrong, and my husband and I together, Victims of our own Biological illnesses, completely out of our control.
Please let me know more about you, and if you too are struggling will illness too?