11 years ago today, December 14, 2009, was my very first Hematology, Oncology appointment. Little did I know the massive train barreling down the tracks full speed ahead towards me, would completely smash my life as I once knew it! I really thought I was just "anemic" from all the "bleeding out" I had been doing in 2008, 2009, and that I was just exhausted from working and playing so much, etc. I joked with my new Dr that I would just drink more Cranberry Juice to make "better blood" and eat more steak lol, to add in more Iron. I just couldn't fathom there was really something seriously wrong with me, as there were never any "serious" health problems in my family (except Alzheimers with my Mother at the time). Jim was shocked, speechless and teary. He just couldn't comprehend it all either. I don't think he ever fully digested what Myeloma was, and how sick really I was. I don't think many do. My outside belies the inside...
I wasn't actually diagnosed with Myeloma at this Dec 14, 2009 appt, but there was a lot of discussion about my horrible blood tests, concerns of high levels of all kinds of things in my blood tests I did not understand, nor ever heard of, and serious worries and corncerns of my super low compromised immune system. I really couldn't absorb or comprehend most of what My Dr was saying. She had me do more and more labs that day, more a few days later and weekly going forward, mentioning possibly needing blood transfusions and possible hospitalization. What? I can't possibly be that "sick". I was scheduled for a Bone Marrow Biopsy for Dec 18. A what? I surely didn't "need" something so serious and painful like that. They must have mixed up my labs with someone else! And yes Google became my best friend, even though everyone warned against that.
All these slides represented me, but I didn't know it yet...
Julie- I think of you often! I feel I should get continuing education credits for all the knowledge imparted over the years regarding the diagnosis, diagnostic tests. medication with side effects, ad especially sharing your feelings. What a crazy journey! I wish for you to have more time, more pleasant days and not to lose your incredible fighting spirit!!ReplyDelete
Ah, so great to hear from you Laurie! And thank you for the good laugh re CEU's LOL. Same for me! I've had to learn so much about this crazy morphing changing incurrable cancer too. Still so surreal to me. I read and read and read, but so little sinks in. But one thing I do know, Myeloma is super smart, and I have to stay on top it. Thank you continuing to read and stay in contact :)) And thank you for all your support and encouragement over all the years we've been friends. Hoping all is good with you and your family, and you can also always email your update xoxo Here's to all our CEU's!!!Delete
Loved reading this thankksReplyDelete